News

November 5, 2020November 9, 2020

Rare Case of Lung Cancer-linked LEMS Underscores Importance of Screening

News

A recent case study of a woman with Lambert-Eaton myasthenic syndrome (LEMS) linked to lung adenocarcinoma — a type of cancer of the mucus-producing gland cells in the lungs ... Read more

October 30, 2020October 30, 2020

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

News, syndicated

A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be featured on the front cover of an upcoming calendar ... Read more

October 29, 2020October 29, 2020

Firdapse Now Widely Available in Canada for Treating LEMS, KYE Pharmaceuticals Says

News

Firdapse (amifampridine) is now widely available in Canada as a treatment for adults with Lambert-Eaton myasthenic syndrome (LEMS), according to KYE Pharmaceuticals, which markets the oral therapy. Health Canada, ... Read more

October 23, 2020October 23, 2020

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

News, syndicated

A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its use in future appointments, a ... Read more

October 22, 2020October 22, 2020

Catalyst Given US Patent Covering Firdapse in Treating LEMS

News

The U.S. Patent and Trademark Office has issued a new patent to Catalyst Pharmaceuticals covering the company’s rights to Firdapse (amifampridine), a treatment for Lambert-Eaton myasthenic syndrome (LEMS). The patent ... Read more

October 15, 2020October 15, 2020

NSF Funds Project to Make Better Computer Simulation of Nerve-muscle Communication

News

A $750,000 grant from the National Science Foundation will fund a project to build a better computer model of the communication between nerves and muscle cells. The project may ... Read more

October 8, 2020October 8, 2020

Newly Funded UNC Computer Simulations Could Help Find LEMS Treatments

News

An $86,880 grant from the National Science Foundation will support the development of computer simulations that aim to improve scientists’ understanding of the neuromuscular junction (NMJ) — the site ... Read more

October 7, 2020October 7, 2020

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

News, syndicated

Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their favorite photographs in a calendar contest to heighten awareness of rare ... Read more

October 1, 2020October 1, 2020

Ruzurgi Now Available in Canada for Patients Ages 6 or Older

News

Ruzurgi (amifampridine), an oral treatment for Lambert-Eaton myasthenic syndrome (LEMS), is now available to Canadian patients ages 6 or older. Following its approval by Health Canada earlier this year, ... Read more

September 10, 2020September 10, 2020

Wait Between Repeat Nerve Stimulation Tests in LEMS, Researcher Advises

News

When monitoring Lambert-Eaton myasthenic syndrome (LEMS) patients, physicians should wait at least 150 seconds between nerve stimulation tests to avoid interference from prior exercise or electric stimulation in subsequent ... Read more