News

October 29, 2018

#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News

With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range of hot-button issues, from the Orphan Drug Tax Credit ... Read more

October 15, 2018October 15, 2018

Stimulated Single-Fiber Electromyography an Accurate Diagnostic Tool in LEMS, Case Report Suggests

News

Using stimulated single-fiber electromyography is associated with an early and accurate diagnosis of Lambert-Eaton myasthenic syndrome, according to a case report. The study, “Stimulated single-fiber electromyography (sSFEMG) in Lambert-Eaton ... Read more

October 9, 2018

Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

News

Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced to seven years in federal prison for securities and wire fraud while heading San Diego-based ... Read more

September 21, 2018

#NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

News

More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to converge on Washington, D.C., next month for the 2018 NORD Rare Diseases & Orphan Products ... Read more

September 10, 2018September 10, 2018

Fast, Noninvasive Triple-Timed Up-and-Go Test Can Assess LEMS Severity in Patients, Study Shows

News

A quick and noninvasive test, called the triple-timed up-and-go test, is a reliable and reproducible tool to assess muscle weakness in Lambert-Eaton myasthenic syndrome (LEMS) patients, according to a study. ... Read more

August 20, 2018August 20, 2018

LEMS Associated with Small Cell Cervical Cancer and Breast Cancer in Case Study

News

A new case report describes a patient with Lambert-Eaton myasthenic syndrome (LEMS), small cell cervical cancer and breast cancer. This is the first report of a LEMS patient with ... Read more

July 23, 2018July 23, 2018

Diagnostic Test May Not be Highly Specific for LEMS, Study Warns

News

Contrary to current thinking, testing for levels of antibodies against voltage-gated calcium channels may not be highly specific for Lambert-Eaton myasthenic syndrome (LEMS), researchers caution in a recent study. ... Read more

June 11, 2018June 11, 2018

Case Report Describes Patient with LEMS, Myasthenia Gravis, and Advanced Lung Cancer

News

A new case study describes a patient with Lambert-Eaton myasthenic syndrome (LEMS), myasthenia gravis (MG), and metastatic small cell lung cancer (SCLC). The report from Shandong, China, is titled ... Read more

June 4, 2018June 4, 2018

FDA Accepts Catalyst’s NDA for Firdapse with Priority Review Status for LEMS

News

The U.S. Food and Drug Administration has accepted Catalyst Pharmaceuticals’ new drug application (NDA) for Firdapse (amifampridine phosphate) for Lambert-Eaton myasthenic syndrome (LEMS), with priority review status. Firdapse is a formulation of ... Read more

May 21, 2018May 21, 2018

Cerebellar Ataxia in LEMS Patients May Be Due to Calcium Channel Autoantibodies, Study Finds

News

Patients with Lambert-Eaton myasthenic syndrome (LEMS) and cerebellar ataxia may have autoantibodies against calcium channels, a Mayo Clinic study indicates. The study, titled “Calcium Channel Autoimmunity: Cerebellar Ataxia and ... Read more

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