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February 20, 2019

Vienna to Host RARE2019 Meeting on Rare Diseases

News

About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city early next month for the 2nd International Congress on Advanced Treatments in Rare Diseases. The ... Read more

February 12, 2019February 12, 2019

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

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Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run ... Read more

February 11, 2019February 11, 2019

Repetitive Nerve Stimulation Test Could Be Useful to Diagnose LEMS, Myasthenic Crisis, Study Shows

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A repetitive nerve stimulation test can help diagnose and differentiate between Lambert-Eaton myasthenic syndrome (LEMS) and myasthenia gravis (MG) patients undergoing a myasthenic crisis, a study shows. The study, “Repetitive nerve stimulation test in ... Read more

February 4, 2019February 4, 2019

LEMS Patients Can Get Financial Aid from The Assistance Fund

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In recognition of the economic burden that comes with a diagnosis of Lambert-Eaton Myasthenic Syndrome (LEMS), the Assistance Fund has opened a financial assistance program to help eligible patients ... Read more

February 1, 2019

FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

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The U.S. Food and Drug Administration(FDA) is updating its 2015 draft guidelines for drug discovery in rare diseases, with new guidance on natural history— how disorders such as spinal ... Read more

December 20, 2018January 8, 2019

Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News, Recently Published

Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures — at exactly the same time as the promise of new but expensive therapies to ... Read more

December 3, 2018December 3, 2018

Firdapse Approved in U.S. for Adults with Lambert-Eaton Myasthenic Syndrome

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The U.S. Food and Drug Administration has approved Firdapse (amifampridine phosphate), developed by Catalyst Pharmaceuticals, for adults with Lambert-Eaton myasthenic syndrome (LEMS), making it the first approved therapy in the U.S. for ... Read more

November 26, 2018November 26, 2018

Anti-SOX2 Antibodies May Be Useful Markers of Small Cell Lung Cancer in LEMS Patients, Study Says

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Antibodies that recognize a protein called SOX2 that are specific markers of small cell lung cancer (SCLC) could be used to identify patients with Lambert-Eaton myasthenic syndrome (LEMS) who have this ... Read more

November 5, 2018November 5, 2018

Treatment with Lemtrada Caused LEMS in Relapsing-Remitting MS Patient, Case Report Shows

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Use of the immunotherapy alemtuzumab can promote the development of Lambert-Eaton myasthenic syndrome (LEMS), a rare case study in a patient with relapsing-remitting multiple sclerosis suggests. The study, “Lambert-Eaton ... Read more

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