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Check in with me
Good morning all!
It’s been a while since we all checked in with each other.
How is everyone doing? Is everyone hanging in there?
Have you found any new hobbies to keep you busy while social distancing?
Hope to hear from you!
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3 Replies
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I am doing ok. Depending a great deal on my medications. I have been taking azathioprine in lieu of prednisone. Much more tolerable.
I also started with slow release mestinon at bedtime (thank you Price) which has helped with my strength.I am concerned about the vaccine due to my immune suppressant medication. Hopefully I I will get directions from my neurologist.
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I’m really glad you’re on to the time release Mestinon. I think it really helps, and I’ve had overnight issues with LEMS weakness. The vaccine is not live, according to what I read, and does not give you Covid. For each of us it’s a personal risk/reward decision. I’ve just advised my Primary yesterday , I DO want the vaccine.
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Hey @joanneevans
I’m glad to hear that the prednisone is more tolerable for you!
I have decided that I will be getting the vaccine. It took a lot of thought and research on my part, but for me I think the benefits outweigh the risks. I would be interested to hear what your neurologist says- Let us know!
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