-
Checking in!
Good morning!
Sorry I was absent last week. I had some issues with my IVIG orders and it took the week to get everything straightened out.
Have you had a last-minute issue come up with your treatment before?
I received a call last Friday morning at work that I had to have another appointment with my neurologist before I could get my IVIG. My neurologist recently moved to Cleveland Clinic so getting a hold of him was not the easiest, as he also travels quite frequently.
After the call on Friday, I was in a complete panic because I was supposed to have IVIG on Tuesday and Wednesday. The panic caused my myasthenia to flare (of course), and I spent the majority of the week with heavy legs. I also tripped and fell and had many near misses at work because my feet “weren’t listening” to my brain telling them to move, or they weren’t able to move as quickly as I needed to at work.
Have you guys ever had this issue?
It happens to me every so often but has never been as bad as it was.
I was worried that I wouldn’t be able to get an appointment with my neurologist, especially on a two-day notice. Luckily he was able to fit me in, although I had to delay my IVIG a day.
I had planned a short trip on Thursday to see my favorite band, The Brothers Osborne, in Richmond which is a two-hour drive. I didn’t want to miss the concert as I had pretty good seats and had already reserved a room to stay the night there. So I ended up getting my IVIG and immediately rushed to Richmond, and barely got there in time for the concert to start.
Of course, I knew I was going to pay for not spending my IVIG night resting as I typically do. I spent a good majority of the weekend sleeping, but am feeling better now!
How are you guys doing?
Is everyone else’s treatment going well?
Log in to reply.