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How did you feel when you got your diagnosis?
For me it was about 9 years before I got the LEMS diagnosis. In 2009 I mysteriously couldn’t walk due to muscle weakness but recovered without a diagnosis. The off and on weakness came and went until 2017 when extreme weakness started affecting my work. I can’t describe the elation I felt, getting that Lambert-Eaton diagnosis. Who’s happy they’ve been told they have an incurable neuromuscular disorder, right! Well, when you’ve been dealing with a mystery that affects your daily life for years, and you suddenly get a name for it…trust me it’s exciting news! I know what it is. I can make a plan. Those were the thoughts running through my head.
Here a just published article on getting that LEMS diagnosis!https://lamberteatonnews.com/health-insights/2021/01/04/emotional-responses-to-lems-diagnosis/
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