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Light Up For Rare, Rare Disease Day Coming Up!
It’s not too early to begin planning for Rare Disease Day, February 28th this year. It’s a time for all of us with rare diseases to let our friends and the world know about us. I always put something up on my Facebook page to make my friends aware. There is much more that can be done though.
This year’s campaign is “Light Up For Rare”. After you read about it in the article you can sign up for it here.
The article explaining the campaign headed by NORD (National Organization for Rare Disorders) year is here.
Let’s do our part to bring needed attention to LEMS and the other 4,000 rare disorders.
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