Lambert-Eaton News Forums Forums Treating LEMS Firdapse and Ruzurgi (Amifampridine) RUZURGI: Does it REALLY need to be refrigerated?

  • RUZURGI: Does it REALLY need to be refrigerated?

    Posted by Dawn DeBois on December 19, 2019 at 10:00 am

    When I received my 3,4 DAP in the mail, it was always in a cooler and marked that it needed to stay refrigerated. For those on 3,4 DAP, now RUZURGI, how long can it stay out of the refrigerator? Does it lessen it’s effectiveness if you don’t keep it refrigerated?

    Dawn DeBois replied 4 years, 3 months ago 2 Members · 2 Replies
  • 2 Replies
  • Ben Brown

    Member
    January 4, 2020 at 3:07 pm

    My neuro-pharmacist said her understanding was that it could be left un-refrigerated for up to 3mo, but I just keep mine in the fridge anyway. I take out what I need for the day and carry that with me.

  • Dawn DeBois

    Member
    January 4, 2020 at 3:36 pm

    That sounds like a good plan Ben. I was on 3,4 DAP during the compassionate use phase, and kept mine in the fridge as well.  If they are going to go through all of the trouble to ship it in a cooler, there’s a reason! 😉

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