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What age were you diagnosed with LEMS?
Hey all!
Recently, I’ve had a couple of people reaching out to me on social media that were newly diagnosed with LEMS, a couple of them my age.
I’m wondering what age you all were when you were diagnosed with LEMS?
I was 26. What about you?
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9 Replies
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Hi Ashley. I am in the group to give my sister with LEMS support. She was 65 at diagnosis.
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Hey @sweepea32
Yes, I remember chatting with you earlier this year! Thanks for sharing with us!
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yes thanks for remembering Ashley.
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No problemĀ @sweepea32
How is she doing?
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So so…she could be doing much better. The chemo has taken a toll and the LEMS is really tough. After the holidays she may consider IVig…it is such a struggle. Thanks for asking. I hope you are doing ok. š
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I was 63
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HeyĀ @sweepea32!
I’m sorry to hear, she is going through so much! I really think (and hope) that IVIG could be promising for her and give her some relief! Keep me updated!
HeyĀ @bobbi-lynn-berry !
Thanks for sharing! I think the majority of this group was diagnosed around then as well
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Ha. Donāt know what I was thinking!!! Ā I was 53. Not 63!!! Ā Been 12 years since my diagnosis.
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No worriesĀ @bobbi-lynn-berry
We all have our “brain fog” moments, and lately I’m finding I have a lot more of them so I totally understand! š
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No worriesĀ @bobbi-lynn-berry
We all have our “brain fog” moments, and lately I’m finding I have a lot more of them so I totally understand! š
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