Biography

Name

Roberta

Nickname

roberta

Year of Birth

1955

Gender

Female

Location

Iowa

Relationship

Patient

Short Bio

I was diagnosed with LEMS in July of 2008. I was living in Illinois at the time and was sent to the University of Wisconsin/Madison to figure out what was going on. The doctor I was sent to had studied under Dr Lambert at the Mayo Clinic and diagnosed the LEMS very quickly. I started Mestinon right away. After the cancer screenings (which were all negative) I was put on immune suppression drugs. I had bad reactions to those drugs and then was started on the IVIG. 4 grams per kg. (20 grams for me). I want to report that I started with an infusion every 4 weeks….A few years ago went  to 5 weeks and now go every six weeks. I still take Mestinon. Hopefully this will encourage someone else going through this.

How did you hear about us?

Lambert Eaton News

How long have you or the person that you are caring for had LEM?

11 years

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