Dawn DeBois

Thanks @lisa! It’s fun to do “top of mind” member profiles and not worry about editors!!  😉

It’s nice to see you in The Forums, too!

@romylb,

Everyone needs to know what an amazing advocate, friend, Mama, daughter, wife, and kick ass LEMS patient you are….The list goes on.  I can’t wait till things start to open up because I miss you bunches. We are long overdo for laughing our way through the halls of whatever convention or meeting we are at!

When you have a link to one…[Read more]

@pricewool,

We are SO LUCKY to have you reading the Lambert-Eaton News flash briefings. 

Everyone should hook up their Alexa devices to read them automatically by simply saying “Alexa, read my news.”  If anyone would like to know how to set up the skill, let us know!

I couldn’t agree more with how great Brian Murphy, PH.D’s new articles ar…[Read more]

Hi @jennyc,

Welcome to the Forums. We all understand the difficult part of getting a diagnosis such as LEMS but the concern for cancer that goes along with it. I went decades with every other reason given for my weakness, increasing numbness and deteriorating vision other than LEMS. Many of us that have been diagnosed become very active in the…[Read more]

Hi @searching4answers!

Thanks for all of the info you have shared. I’m glad the Lambert-Eaton News has been helpful for you.  Like @pricewool and @ashleygregory757, I’ve had lots of experience with IVIG as well. IVIG definitely helped hugely in managing my LEMS symptoms. I described more about that in my column: IVIG is a Key to My Success with…[Read more]

Let’s see, my 3 things for Thankful Tuesday are:

1) I’m thankful my LEMS symptoms are managed right now with minimal meds. More about that to come soon in my column!

2) Like you, @ashleygregory757, I’m so thankful for all my fur babies silly antics and constant companionship during these isolating times.  I’m honestly not sure how anyone…[Read more]

Hi @ashleygregory757,

Great questions!  The last flu shot I had, several years ago, I became really sick and still got each virus that was going around the call center I was working at. My PCP and neurologist are ok with me not getting the flu shot due to how sick it made me. We also feel that the antibodies I’m getting from my immunoglubulin…[Read more]

Yeah @pricewool!  Another video!!

You have such  talent- Thank you for sharing it with us on the Forums!  Grapevine looks like a very cool place. I’ve tried to do videos on occasion and they are horrible- I’ll stick with writing!

I walk Rocky the pug every day and often times I’ll see things and think “that would be a cool picture” but I do…[Read more]

Hi @ashleygregory757,

Your question is very interesting about how many patients actually have SCLC near the diagnosis of LEMS. I have met some patients who have had cancer, and know of a couple who have survived small cell lung cancer. Most often, however, the patients with a cancer diagnosis are not the ones who are active on social media…[Read more]

Hi @ashleygregory757,

Thank you for your honesty in sharing your personal experience with depression. It’s important to relieve the stigma around it.

I’ve battled depression since my mid 30’s. Raising 3 boys with no family to help and an ex whose mission was to beat me down mentally at every opportunity was very difficult. However, my depre…[Read more]