Biography

Name

JessicaPace

Nickname

jessicapace

Year of Birth

6/14/1998

Gender

Female

Location

Ventnor City

Relationship

Patient

Short Bio

(sorry its long )

Hi, I was diagnosed with mg , in the hospital but then had issues with doctors. And , the test kept coming out negitive etc. I fit most of lems symtoms. But, also I have other systoms too. Hmm I want the understand what type of weakness you guys have. Because for example I move my leg , it gets weak and lets say im at 75%. It goes to 30% where im barely able to move it. But I can rest for a couple of minutes (maybe 2 to 20 mins) then it will bounce up to 45%. it does this alot I can push myself and go from 30% to 60%  and im walking and not falling. 1.)My legs can be stiff , 2.)it feels tight and 3.)hard to move, 4.)burning on my feet, ( even in my hands, upper also have weakness and the same issue im just focusing on legs to make it easier to understand.) 5.) if i keep pushing it I feel a sharp pinching needle like pain  in the joint area. 6.)I get killer knee pains, cramping of the calf.( sharp pains in also radiate from my underarms to my chest.)I f I keep pushing it can varie I last for maybe 1 to 2 before having to sit. But it depends sometimes its like only 10 to 30 minutes. It varies so 10 minutes to 2hrs or even more. But once I relax the muscle or rest for a certain about of time like 10 minutes thats when i will start feeling. But i can feel the hard time breathing, sharp pains in chest before 2hrs etc. (and noted I still feel muscle weakness its just i can position my legs , by leaning on to be like straight (hard to explain) and it keeps my legs up  or i just fall but I dont acre very much about that because I fall everyday. ANd , sometimes im just walking running or looking funny.                                                 Moving from leg area. I get killer backpain and the tailbone area and then the lower back area that goes up untilt eh middle of my spine. Varies and pain but i can usually feel it everyday and generally all day just not always painful. Also right now I have pevlic pain and it um the whole botton area just feels , like the pelvic pain , along and the tailbone pain. Very odd. So , like maybe 20% sensation good but mostly all bad. (20% depends it can be less) sensation basically.  ANd , no not preg and its not yeast infection , or urinary i got checked 2 days ago. It also gets worse on my menstrual cycle.

ANd, going to the 1 number is painful as well , no not yeast or urinary. But there is a burning. And I do have a lump on the side of the bone behide my ear. A lil tiny swollen lymph node under the area wheere bump first appeared.

Extra thinsg u may experience

And yes going to  gyno. Bunch of other systoms too like problems thinking but only when im  pushing it, dizzying , feeling like on a ship , when i sit up from laying down or just getting up. I feel like img ain to pass out. Not to mention the breathing get down to 30% but not ever really going to much further besides when i was and hospital and couldnt stop coughing for hrs. But that was when it first started.

Sorry for the long thingy i just want to see if everyone have systoms like this or not because maybe im having different things at once or having a whole different issue. Thank you!!!

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How long have you or the person that you are caring for had LEM?

(At some point mis-diagnosed with mg)Im here to see the issues im experiencing our a lil similar or way off. I unfortunately have to be my own doctor. I have really bad insurance and of the neru ppl i want to see I cant. Because they just dont accept my insurance.

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