Biography

Name

Karyn

Nickname

karyn

Year of Birth

1972

Gender

Female

Location

New York

Relationship

Patient

Short Bio

Hello everyone. My name is Karyn and I was diagnosed with LEMS March 2021 and just recently POTS.  For treatment I am getting IVIG every two weeks and occasionally steroids.   I have yet to feel better and I am trying to figure all of this out.  I am thankful for this website and look forward to speaking with other members .

How did you hear about us?

Lambert Eaton News

How long have you or the person that you are caring for had LEM?

Just diagnosed in 2021

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