Wanda Grischkowsky

Brought on by illness, I continue to battle depression although I take Lexapro (a SSRI).

It gets harder to deal with new diagnoses and flares.

I have had fluctuating glucose levels for years now. Diagnosed with Type 2 diabetes initially, I was put on oral medication but experienced extremely low glucose. So, I had to stop taking diabetes medications.

Recently my glucose started increasing overnight only. My endocrinologist did a lab test which I tested positive for latent autoimmune…[Read more]

Thank you for the tips. I am pretty hard on myself when it comes to listening to my body. Pushing myself only makes the situation worse. I do try to accomplish things early morning because I tend to go downhill by afternoon.

I transitioned from Ruzurgi to Firdapse about 3 weeks ago and do not think it is as effective. My weakness has worsened but…[Read more]

I also use Biotene mouthwash which does help with dry mouth.

I take Losartan. Prior to that I took Lisinopril, but it was stopped. I was told to avoid beta blockers.

It can become complicated because some days I have to miss or decrease the dosage because my blood pressure drops too low, causing grey-outs or blackouts.

It took me 15 years to receive a diagnosis. Even doctors at Johns Hopkins Hospital missed it. I was always considered “complicated” and was even told my symptoms were in my head and that I was malingering.

However, when I saw a specialist for Dysautonomia, he diagnosed LEMS.

I currently take Ruzurgi and get IVIG two consecutive days every 4 wee…[Read more]

My balance is pretty bad. However, I try to walk on the treadmill especially during summer and winter seasons. I can’t handle heat and the winters are hard on my asthma.

I only wish I could get in daily exercise, but my body won’t allow that.

I received both doses of Pfizer COVID vaccine and the booster. No issues with the first dose, but had some mild flu-like symptoms  with the second dose. I had mild symptoms with the booster that lasted a day.

Concerning statins, I tried taking them years ago, but always suffered with muscle pain and weakness. Recently my endocrinologist…[Read more]

Very interesting. I had repeat EMG tests.

It took almost 15 years for a LEMS diagnosis. I was misdiagnosed with Fibromyalgia, MS and other conditions.