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Wanda Grischkowsky replied to the topic 10 Everyday Signs of Depression in the forum Living With LEMS 1 month, 1 week ago
Brought on by illness, I continue to battle depression although I take Lexapro (a SSRI).
It gets harder to deal with new diagnoses and flares.
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Wanda Grischkowsky replied to the topic Glucose issues with LEMS in the forum General Questions and Topics 1 month, 2 weeks ago
I have had fluctuating glucose levels for years now. Diagnosed with Type 2 diabetes initially, I was put on oral medication but experienced extremely low glucose. So, I had to stop taking diabetes medications.
Recently my glucose started increasing overnight only. My endocrinologist did a lab test which I tested positive for latent autoimmune…[Read more]
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Wanda Grischkowsky replied to the topic What To Do On a Bad LEMS Day in the forum Living With LEMS 2 months, 3 weeks ago
Thank you for the tips. I am pretty hard on myself when it comes to listening to my body. Pushing myself only makes the situation worse. I do try to accomplish things early morning because I tend to go downhill by afternoon.
I transitioned from Ruzurgi to Firdapse about 3 weeks ago and do not think it is as effective. My weakness has worsened but…[Read more]
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Wanda Grischkowsky replied to the topic Dry mouth from Firdapse in the forum General Questions and Topics 4 months ago
I also use Biotene mouthwash which does help with dry mouth.
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Wanda Grischkowsky replied to the topic Blood pressure medication in the forum General Questions and Topics 4 months, 3 weeks ago
I take Losartan. Prior to that I took Lisinopril, but it was stopped. I was told to avoid beta blockers.
It can become complicated because some days I have to miss or decrease the dosage because my blood pressure drops too low, causing grey-outs or blackouts.
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Wanda Grischkowsky replied to the topic How Long To Get Your LEMS Diagnosis? in the forum General Questions and Topics 5 months ago
It took me 15 years to receive a diagnosis. Even doctors at Johns Hopkins Hospital missed it. I was always considered “complicated” and was even told my symptoms were in my head and that I was malingering.
However, when I saw a specialist for Dysautonomia, he diagnosed LEMS.
I currently take Ruzurgi and get IVIG two consecutive days every 4 wee…[Read more]
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Wanda Grischkowsky replied to the topic It's Easy When It's Easy, Walking with LEMS in the forum Living With LEMS 6 months, 3 weeks ago
My balance is pretty bad. However, I try to walk on the treadmill especially during summer and winter seasons. I can’t handle heat and the winters are hard on my asthma.
I only wish I could get in daily exercise, but my body won’t allow that.
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Wanda Grischkowsky replied to the topic We want to hear about your experience with the COVID Vaccine! in the forum Coronavirus (COVID-19) and LEMS 6 months, 3 weeks ago
I received both doses of Pfizer COVID vaccine and the booster. No issues with the first dose, but had some mild flu-like symptoms with the second dose. I had mild symptoms with the booster that lasted a day.
Concerning statins, I tried taking them years ago, but always suffered with muscle pain and weakness. Recently my endocrinologist…[Read more]
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Wanda Grischkowsky replied to the topic LEMS Diagnosis Improved With Lower EMG Test Threshold, Study Finds in the forum In the News 2 years, 1 month ago
Very interesting. I had repeat EMG tests.
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Wanda Grischkowsky replied to the topic How long to diagnosis? in the forum Diagnosed- What now? 2 years, 1 month ago
It took almost 15 years for a LEMS diagnosis. I was misdiagnosed with Fibromyalgia, MS and other conditions.
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Wanda Grischkowsky became a registered member 2 years, 5 months ago
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Wanda Grischkowsky became a registered member 2 years, 5 months ago
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Welcome to the Lambert-Eaton News Forums,Wanda! We are so happy to have you join us. Take a look around in the different forums, and be sure to read the Using Our Forums post from Kevin Schaefer, our Forums Director here at BioNews. Please introduce yourself in the whichever sub-forum topic fits your needs best when you have a chance. I can’t w…[Read more]
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Wanda Grischkowsky's profile was updated 2 years, 5 months ago