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unwanted side effects
I’m an 80 year old male ex-healthy airline pilot. My sleep quality and duration is poor. I’m seeing a sleep specialist and a CBT therapist. No one seems to want to venture an opinion that it could be LEMS or the firdapse. Anyone else having this issue? Been taking 5 mgs melatonin and 6 mgs silenor, (doxepin) since a few years before my LEMS diagnosis which took untold time and effort to get. Heck, maybe it’s simply my age.
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1 Reply
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I’m 70, have LEMS, and sleep is always an adventure. Sometimes it’s great, sometimes not at all. I’ve been on CPAP for many, many years. LEMS very definitely can be a factor. I could never count the times I go to bed slammed from a LEMS crash. Given your report, I’d definitely see a pulmonologist who can assess your need for a sleep study. There is a manner of support, including CPAP to assist and support.
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Thanks, Price for your comments. I neglected to include that I’ve been using a CPAP since 2008, but the onset of the LEMS was insidious and caused confusion as to what came first, (It took quite some time to get a correct diagnosis). I concur with your “LEMS crash” and “adventure” comments.
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