When my girls were 10 and 12, the Navy moved our family from the warm climate of Florida to the shores of New England. We embraced Connecticut wholeheartedly and couldn’t wait to see snow. I would fling open the curtains to watch the soft snow gently blanket our backyard. The…
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The U.S. Food and Drug Administration (FDA) has tentatively approved Lupin’s generic version of Firdapse (amifampridine) for people with Lambert-Eaton myasthenic syndrome (LEMS), ages 6 and older, according to a company press release. This means the treatment satisfies all the requirements to be marketed in the U.S.
When our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) at the age of 15, worry consumed me. I wondered what her young life would look like as she grew older. The unknown kept me up at night. I worried about Grace’s quality of life and if she’d…
Becoming educated and informed about LEMS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your LEMS journey.
There is no cure for LEMS yet, but there are treatments that can help manage the disease. Learn more about current therapeutic approaches here.
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