The first time we noticed our daughter Grace exhibiting symptoms of what we now know to be Lambert-Eaton myasthenic syndrome (LEMS), we were in the airport traveling to Texas for Christmas. Our three kids were dragging their suitcases through the parking garage to the check-in counter. Suddenly, we…
Read more
The National Organization for Rare Disorders (NORD) is offering a financial support program to aid people with Lambert-Eaton myasthenic syndrome (LEMS) and their caregivers. The LEMS Patient Assistance Program can provide financial support to cover out-of-pocket healthcare costs linked directly to treatment and care for the autoimmune disease, according…
All of my babies have been little since birth. My two biological children weighed 6 pounds or less when they were born. Even our daughter Grace, who was adopted at 13 months old, was a tiny little thing when she came home to us. Except for Grace, food just didn’t…
Becoming educated and informed about LEMS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your LEMS journey.
There is no cure for LEMS yet, but there are treatments that can help manage the disease. Learn more about current therapeutic approaches here.
Get regular updates to your inbox.
