Columns

February 26, 2020February 24, 2020

Going Beyond My Diagnosis to Learn What Makes Me Rare

Columns, LEMme Tell Ya - a Column by Dawn DeBois

As I look forward to Rare Disease Day, it is not lost on me that five short years ago I hadn’t heard of it. When my first LEMS friend, ... Read more

February 19, 2020February 17, 2020

Reflecting on My First Month on Hizentra

Columns, LEMme Tell Ya - a Column by Dawn DeBois

I have completed my first month on Hizentra (immune globulin), and I am ready to share my experience. (It’s important to note that I am not sponsored, paid, or ... Read more

February 5, 2020February 4, 2020

An Ultra-rare Disease Has Led to an Ultra-rare Friendship

Columns, LEMme Tell Ya - a Column by Dawn DeBois

I don’t think there is a rare disease patient on the planet who doesn’t harbor some hurt deep in their soul about how friendships change after a diagnosis. These ... Read more

January 29, 2020January 27, 2020

I Have 12 More Days in the Month, Thanks to Subcutaneous Treatment

Columns, LEMme Tell Ya - a Column by Dawn DeBois

People often comment that there aren’t enough days in the week or hours in the day. But I’ve found myself looking at a dozen more days in my month! ... Read more

January 15, 2020January 17, 2020

Winning at BioNews Services

Columns, LEMme Tell Ya - a Column by Dawn DeBois

Those of you who follow my Instagram or Facebook pages may have noticed that I was in Philadelphia last week. It was my first time actually leaving the city’s ... Read more

January 8, 2020January 7, 2020

What a Difference a Decade Can Make

Columns, LEMme Tell Ya - a Column by Dawn DeBois

It’s a new year and the beginning of a new decade. Photos have been popping up all over social media, showing how people looked 10 years ago versus now. ... Read more

December 18, 2019December 16, 2019

New Forums Are a First for LEMS Patients

Columns, LEMme Tell Ya - a Column by Dawn DeBois

This has been a year of firsts for Lambert-Eaton myasthenic syndrome (LEMS) patients. Two medications approved by the U.S. Food and Drug Administration became commercially available for patients. It ... Read more

December 11, 2019December 11, 2019

‘LEMme Tell Ya’ Patient Stories in Their Own Words: Betty Ann Lasley

Columns, LEMme Tell Ya - a Column by Dawn DeBois

When I published my first blog post for “The Battle Within,” I was thrilled to receive a comment from a woman in Dallas named Betty Ann Lasley. Not only ... Read more

December 4, 2019December 2, 2019

Dealing with an Unexpected Side Effect While Managing My Migraines

Columns, LEMme Tell Ya - a Column by Dawn DeBois

When you take a plethora of medications to manage multiple chronic conditions, it’s only a matter of time before some of the side effects catch up to you. I’ve ... Read more

November 27, 2019November 25, 2019

Thankful for You, My Readers

Columns, LEMme Tell Ya - a Column by Dawn DeBois

When I checked into my last day of immunoglobulin therapy last week, I sat next to another patient in the waiting area. She looked over at me and said: ... Read more

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