Columns

November 6, 2019November 6, 2019

I Felt a Sense of Camaraderie When Meeting My Fellow Myasthenia Patients

Columns, LEMme Tell Ya - a Column by Dawn DeBois

I recently attended the first meeting of the Northern New England Myasthenia Gravis Support Group in Portland, Maine. The event was hosted by a pharmaceutical company to promote its ... Read more

October 30, 2019October 29, 2019

Putting My Fear of Needles to the Test

Columns, LEMme Tell Ya - a Column by Dawn DeBois

I used to pass out at the sight of blood. As a toddler, I saw the blood from my mother’s suicide attempt. The images from that night will forever ... Read more

October 16, 2019October 18, 2019

IVIG Is a Key to My Success with LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois

We’ve all been there. Our doctors suggest a new treatment for our rare disease, and after consulting with other patients through social media, we decide that the option is ... Read more

October 9, 2019October 7, 2019

‘LEMme Tell Ya’ Patient Stories in Their Own Words: Price Wooldridge

Columns, LEMme Tell Ya - a Column by Dawn DeBois

This month’s “’LEMme Tell Ya’ Patient Stories in Their Own Words” features a Lambert-Eaton myasthenic syndrome (LEMS) patient I am grateful to call my friend. Price Wooldridge offers encouragement ... Read more

September 25, 2019September 25, 2019

Children of ‘Rare Parents’ Give Me Hope

Columns, LEMme Tell Ya - a Column by Dawn DeBois

One of the first Lambert-Eaton myasthenic syndrome (LEMS) patients I had the pleasure of meeting in real life was Romy Braunstein. Romy is taller than me, which is no ... Read more

September 18, 2019September 16, 2019

‘LEMme Tell Ya’ Patient Stories in Their Own Words: Ashley Gregory

Columns, LEMme Tell Ya - a Column by Dawn DeBois

For the remainder of 2019, “LEMme Tell Ya” will feature a monthly series called “‘LEMme Tell Ya’ Patient Stories in Their Own Words.” The series will highlight Lambert-Eaton myasthenic ... Read more

September 11, 2019September 9, 2019

Not All Superheroes Wear Capes

Columns, LEMme Tell Ya - a Column by Dawn DeBois

I wasn’t diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) until my sons were grown. Upon his return from serving in the Navy, one of my sons remarked how happy he ... Read more

September 4, 2019September 3, 2019

My Mental Health Safety Net

Columns, LEMme Tell Ya - a Column by Dawn DeBois

In my last column, I shared wording that I’ve used to explain Lambert-Eaton myasthenic syndrome (LEMS) to my family, friends, and medical providers. However, I feel that I would ... Read more

August 28, 2019August 26, 2019

How Do You Tell Someone You Have a Disease They’ve Never Heard Of?

Columns, LEMme Tell Ya - a Column by Dawn DeBois

If you are like me, when you finally received a diagnosis of Lambert-Eaton myasthenic syndrome (LEMS), you were excited to tell the world what has been causing your unexplained ... Read more

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