Columns

How the kindness of strangers boosted us on a difficult LEMS day

Last December, our family spent a few days in Atlanta working with the humanitarian aid organization Samaritan’s Purse on its project Operation Christmas Child. It was a trip I wasn’t sure our daughter Grace could make. She’d been diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) three years earlier,…

A change of scenery offers a reprieve from LEMS symptoms

A plaque hanging in our dining room lists all the places our little family has called home. Those include Camp Lejeune, North Carolina; Norfolk, Virginia; La Maddalena, Italy; and Sembawang, Singapore, among others. Throughout my adult life, I embraced a common phrase floating around the U.S. Navy: “Home is where…

Reflecting on my daughter’s first experience with IVIG therapy

Note: This column describes the author’s own experiences with IVIG therapy. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Our family learned the gravity of words when our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS)…