Columns

September 25, 2019September 25, 2019

Children of ‘Rare Parents’ Give Me Hope

Columns, LEMme Tell Ya - a Column by Dawn DeBois

One of the first Lambert-Eaton myasthenic syndrome (LEMS) patients I had the pleasure of meeting in real life was Romy Braunstein. Romy is taller than me, which is no ... Read more

September 18, 2019September 16, 2019

‘LEMme Tell Ya’ Patient Stories in Their Own Words: Ashley Gregory

Columns, LEMme Tell Ya - a Column by Dawn DeBois

For the remainder of 2019, “LEMme Tell Ya” will feature a monthly series called “‘LEMme Tell Ya’ Patient Stories in Their Own Words.” The series will highlight Lambert-Eaton myasthenic ... Read more

September 11, 2019September 9, 2019

Not All Superheroes Wear Capes

Columns, LEMme Tell Ya - a Column by Dawn DeBois

I wasn’t diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) until my sons were grown. Upon his return from serving in the Navy, one of my sons remarked how happy he ... Read more

September 4, 2019September 3, 2019

My Mental Health Safety Net

Columns, LEMme Tell Ya - a Column by Dawn DeBois

In my last column, I shared wording that I’ve used to explain Lambert-Eaton myasthenic syndrome (LEMS) to my family, friends, and medical providers. However, I feel that I would ... Read more

August 28, 2019August 26, 2019

How Do You Tell Someone You Have a Disease They’ve Never Heard Of?

Columns, LEMme Tell Ya - a Column by Dawn DeBois

If you are like me, when you finally received a diagnosis of Lambert-Eaton myasthenic syndrome (LEMS), you were excited to tell the world what has been causing your unexplained ... Read more

August 21, 2019August 19, 2019

Was My Fibromyalgia a Misdiagnosis?

Columns, LEMme Tell Ya - a Column by Dawn DeBois

I was in my mid-30s when my painful, yet vague Lambert-Eaton myasthenic syndrome (LEMS) symptoms began to interfere with my daily life. I was unable to walk any distance, ... Read more

August 14, 2019August 12, 2019

I Had Many Vague Symptoms Before My LEMS Diagnosis

Columns, LEMme Tell Ya - a Column by Dawn DeBois

As a Lambert-Eaton myasthenic syndrome (LEMS) patient, you might not have identified with the experiences that I described in my previous column. However, I’m sure that most of you ... Read more

August 7, 2019August 7, 2019

Severe Scoliosis: My First Neuromuscular Disease Symptom

Columns, LEMme Tell Ya - a Column by Dawn DeBois

Most people look back on being 13 with fond memories of passage into their teen years. Those memories might include sleepovers, getting their ears pierced, or other first steps ... Read more

July 31, 2019July 31, 2019

As an ‘Invisible In-Between,’ I Frequently Experience Discrimination

Columns, LEMme Tell Ya - a Column by Dawn DeBois

If you have a neuromuscular disease like Lambert-Eaton myasthenic syndrome (LEMS) or another invisible illness, you’ve been there. You’ve driven into the parking lot of a grocery store or ... Read more

July 24, 2019July 22, 2019

My Autoimmune Battle Has Brought Me Blessings in Disguise

Columns, LEMme Tell Ya - a Column by Dawn DeBois

My previous column titled, “My Ace Scores Are High. How About Yours?” was not written in my typical motivational style. I avoided smoothing over the reality of the likely ... Read more