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I’m not talking chess pies here. My sister makes a mean chocolate chess pie though. It’s the highlight of my holiday meals when the family gets together. I’m talking about the board game Chess. Yes, than ancient game, the best board game ever, bar none. Can you tell I like to play? Ha. But a silly board game is not the heart of the matte…[Read more]

Good Morning!

I wanted to wish a Happy Thanksgiving to those of you who live in the United States!

I think it’s important to take a step back and think of the many blessings we all have, even though this year may be different than most because of the current pandemic our world is facing. I hope you are still able to find some peace today…[Read more]

Good morning all!

I want to take a second to welcome @lorildunham to the Lambert-Eaton News family! She will be writing a weekly column that will be posted on Mondays! We are happy to have her join us!

If you don’t know, Lori’s daughter was diagnosed with LEMS about a year ago.

Check out her first column article posted yesterday, “The…[Read more]

Let me wish you and those who mean so much to you, Happy Thanksgiving! We have so much to be thankful for every day we get to spend on this earth. The challenges have been epic. They continue to be. But, there is so much positive each day, if we just pause a moment and look. I’m thankful for the family I still have, even though I’m well dow…[Read more]

I know many of us out there live independently, and like it that way. I do. I like my independence and enjoy being self reliant. Having Lambert-Eaton comes with its own set of challenges, and I take special care with many activities, living in my nice apartment in the DFW Metroplex. Just recently I recorded this LEMS Flash Briefing with good…[Read more]

Happy Friday! 

In the last six months, a few of my doctors appointments have been telehealth appointments.

Before my surgery in June, I had a telehealth appointment with my PCP for surgery clearance.

I am glad that many doctors are offering this option now! It’s more convenient to be able to stay home instead of heading to the office,…[Read more]

All of us (even caregivers) have a LEMS diagnosis story. Often it is a long one, strewn with potholes along the way. Early diagnosis is extremely important, and misdiagnosis is all too frequent. A good, early diagnosis, especially if the Lambert-Eaton is triggered by Small Cell Lung Cancer, can be critical to a good outcome. Here’s a Flash B…[Read more]

Sleep is big. Sleeping well is really BIG. Sounds easy. Sometimes it’s not. Often times it’s really NOT. My personal experience over the years has included a couple of sleep studies. I’ve got obstructive sleep apnea and have been on CPAP therapy for decades. It seems to provide the ventilatory support I’ve needed, especially after getting…[Read more]

Good morning all!

I am running low on my “juice” this week because I have my infusion on Thursday and Friday.

If you’re wondering, Price and I lovingly refer to IVIG as “the juice!”

There is definitely a noticeable difference for me by the beginning of week three.

What symptoms bother you the most when you begin to “run low?”

For…[Read more]

Good morning all!

I did a few different home improvement projects this weekend in my backyard. Sunday afternoon, I had to rest after about 2pm because I was exhausted, but luckily my projects were complete! For the remainder of the night, my legs were tight. This happens to me often if I do a lot of gardening or kneeling. I describe this as…[Read more]