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I’m in Bangor, Maine- home of horror writer, Stephen King!

Brainerd, MN

Price, Thank you so much for sharing your experience on your port placement!  I’m sure it will be very helpful to all those that face the same procedure. I’m glad you are doing well looking back on it.

It is amazing how much stress can exasperate LEMS symptoms. I used to allow myself to get stressed out about situations beyond my control, until…[Read more]

Price,

I’m so happy to hear that things went well for you! I think you will find the infusion process so much easier now! Looking forward to hearing how it goes!

So…maybe everything did not go perfect.  We all know stress can cause a LEMS flare.  And what’s not more stressful than going into the hospital for a procedure, right?  For me everything the day before and the day of, went as planned…no problems.  Still, I noticed excessive fatigue the night before the procedure.  I couldn’t stay awake wa…[Read more]

We are three days out now from my Power Port place.  Everything seems to be normal, and I’ve checked the incision sites every day with no signs of infection. The first couple of days there was intense itching, accompanied by some minor discomfort and soreness in the surgery area.  Now, on the third day, the itching is off and the port site is not…[Read more]

Okay!  It’s three days out and all has gone well.  The first couple of days there was some minor discomfort and pain, accompanied by intense itching.  Today the itching has subsided, and the Port site feels fine to the touch and a little pressure causes no pain.  It has been dressed with gauze and a bandage over the steri-strips so far, but today…[Read more]

Those warm blankets are the best!!  I want a blanket warmer at home…and someone to cover me up with them!!  LOL

I’m so glad things went well for you. Thank you for sharing the whole process with our readers. It makes it easier to know what to expect.

I hope you are still feeling good tomorrow morning!!

As my port placement begins, the surgeon tells me there will be a slight prick as he inserts the needle to deliver the local anesthetic. I feel it, but it’s nothing bad.  I feel my paper procedure cover rustling around as he applies pressure and busily works with his hands.  I mention that my neck feels stiff in it’s position.  Quickly I feel a…[Read more]

We’re here!!!  The procedure room has four or five techs scurrying around getting me ready.  I see the table with a giant video screen at one end to display my vitals and real-time imagery the surgeon will use to guide the placement.  I want my knees up so someone puts a large leg roll under them.  Good.  They want my head down, flat on the table.…[Read more]

Alright!  It’s showtime!  I notice a giant video screen at the end of the surgery table to display all my vitals and the real-time imagery they need to guide the port placement.  I’m uncomfortable on the table so they put a large leg roll under my knees to relieve the low back pressure.  They want my head flat on the table, but I find that positio…[Read more]

Today is Port Placement Day!  I always try to give plenty of extra time getting ready, so I can arrive and check-in at Day Surgery on time.  After stirring from soothing wake up alarm music provided by Alexa, I got ready at an easy pace and fed the cats.  It felt unhurried , but I left 10 minutes behind schedule.  After transferring to my sis…[Read more]