Brian Herres

Hi Tim

I can’t take Firdapse either and also reacted badly to IVIG.

Ive been using medical cannabis for almost 2 yrs. Now solely to treat my LEMS.

Oils and edibles didnt work well but i get really good results with a Vaporizer!

I only use it before bed (every night) or sometimes naps if necessary.

For me it was a huge game changer.

Im…[Read more]

I was on it for 3 weeks. Ice cold hands, brain fog, cold nose. It did help my nervous system in the beginning but the 4 1/2 hour seizure and a trip to the hospital put an end to it!  Now just using medical cannabis.

Hi Carol

I use a relatively high dosage right before bed. I use earplugs and a eye mask to isolate myself so i can concentrate (no music or tv). I always have a bottle of water next to the bed ;). I use a special pillow under my knees and i always start on my back for the 1st wave . When it ebbs i turn to my left side for the 2nd wave right side…[Read more]

Hi Debbie

I know exactly what your going through.

I cant take Firdapse or IVIG and my outlook was really bleak.

After some studying i decided to try Cannabis (i found some info that it might help with Myasthenia Gravis as well as MS and ALS).

1. It got me into a positive state of mind and i decided to fight back.

2. I can sleep ok now after…[Read more]

Withings Scanwatch. Expecially good for tracking my puls at night while i sleep (training mode). Im a heart patient as well and have had problems from LEMS??? with Afib.

The right strain with the right dosis works great. Ive tried several different strains as this is kind of a expirmental treatment and have found 2 strains that work!

In Germany i contacted my insurance company which sent me forms for my Doctor to fill out and i sent them all of my medical records. They made a one off decision to approve it as there are no studies for LEMS but i had been using it for about 3 months at the time and showed significant improvement all documented by my doctors. It was a simple process.

Yes no studies as of yet and that was a big hurdle for me with my insurance company. It works great for me and has given me a huge boost in my quality of life Physically and emotionally! Plenty of info online about acytlcholine inhibitors and so forth online also good info regarding cannabis and treatment for ALS and MS!

Hi

Ive been soley using Medical Cannabis here in Germany to treat my LEMS for about a year and a half now!

I had Seizures from Firdapse and also reacted badly to IVIG.

My insurance pays for it and im doing pretty good 🙂

Ive been pretty open about it in our Facebook groups.

Certain types of cannabis are really good at treating alot of…[Read more]