Short Bio |
Hi, I’m Todd. My LEMS diagnoses came from a series of tests really to “rule out” possibilities causing my symptoms. There was no cancer or tumors but i had days when my muscles just didn’t work. Which given the fact that I’m a C1 Quadreplegic (incomplete), made basic movement difficult to impossible. I had been walking 500-1500 feet per day with 3-5 bad days a month. Over the last 4 year’s that changed to 3-5 days a week. Finally, I had an answer and my Dr could no longer refer me to psych.
Happy to have found this site. Ready to learn, participate and support.
Blessings
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How long have you or the person that you are caring for had LEM? |
10+ years (2 months diagnosed)
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