Short Bio |
Just recently was told I have LEMS due to a positive P/Q antibodies test. We are doing an EMG, brain & spine mri and pet scan. I had them done 8 months ago and they were clear then.
I’m now with Sloan Kettering in NYC. I’m learning so much about this illness from these forums. I hope to understand this better with help and guidance from actual people who are experiencing this disease. Sorry for all who have it.
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How long have you or the person that you are caring for had LEM? |
1 month that I’ve known
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