@dpmitnick
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David1949 replied to the topic Doing Things When You Have LEMS in the forum Living With LEMS 1 month ago
Price,
I have multiple mobility aids so I can still get around. Short distances, quad cane. Medium distances, I use my drive walker. Longer distances, I use my battery operated scooter. We are headed to Colonial Williamsburg next week for an outing and I will use whatever mobility aid I need to get out and about.
David
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David1949 replied to the topic Roll call! in the forum Introductions 1 month, 1 week ago
I live in Suffolk, Virginia and was diagnosed with LEMS in 2014.
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David1949 replied to the topic What age were you diagnosed with LEMS? in the forum General Questions and Topics 1 month, 2 weeks ago
I was 64 when I received my diagnosis. I had a stroke in late 2013. My neurologist was concerned that I was having issues with leg weakness afterwards. Testing started in March, 2014 and was diagnosed in August, 2014. Lucky to have an Autonomic Nervous System Lab nearby.
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David1949 replied to the topic What year where you diagnosed with LEMS? in the forum General Questions and Topics 1 month, 2 weeks ago
I was diagnosed in 2014.
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David1949 started the topic Insomnia in the forum Introductions 1 month, 2 weeks ago
Does anyone with LEMS have a good treatment plan for dealing with insomnia?
I came across “479” breathing exercise and wonder if it has helped anyone.
David
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David1949 posted an update 1 month, 2 weeks ago
Hi everyone. This is my first post here. I was diagnosed with LEMS- type N in August, 2014. Been receiving IVIG infusion since December, 2014. As long as someone doesn’t mess with my dosage of IVIG, I am stable. My doctor added Mestonin this April because of evening weakness. Thankful to have been diagnosed after a stroke and started on the right…[Read more]
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David1949 became a registered member 1 month, 2 weeks ago
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Hey David!
Welcome to the Lambert-Eaton News forums @dpmitnick!
My co-moderator @pricewool and I are so happy you have joined our community!We have members from all over the world with LEMS and have a ton of information to offer! I would love to hear more about your experience with LEMS! I also have N-type antibodies and live in Virginia…[Read more]
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