Biography

My husband, Fred, spent five weeks out of state caring for his younger brother with MS. During that time his voice changed and became garbled, his back ached and he had intestinal problems. We drove home in early May after his brother’s funeral. A few days later he lost all balance and had to use a walker. After a trip to ER he spent 3 nights and they ran every imaginable test. All were normal and they suspected MG. Those tests were normal and we saw a reputable neurologist. After a few days he diagnosed LEMS. It’s been a battle!