Updates

January 14, 2021January 14, 2021
Rare Skin Cancer Patient’s LEMS Symptoms Ease With Antibody Treatment

Treatment with immunoglobulins, or antibodies — proteins that help fight off infections — successfully reduced symptoms of Lambert-Eaton myasthenic syndrome (LEMS) in a woman ... Read more
January 12, 2021January 6, 2021
As a Parent, Determining When to Step in to Help Is a Challenge

Raising a child with a physical disability can be a balancing act of sorts. It requires a balance between focusing attention on the child ... Read more
January 11, 2021January 11, 2021
NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to speak at its upcoming virtual ... Read more
January 11, 2021January 11, 2021
Palliative Care for LEMS

Lambert-Eaton myasthenic syndrome can lead to a number of debilitating symptoms. The condition is often accompanied by small cell lung cancer. If you have ... Read more
January 7, 2021January 7, 2021
Fisher Syndrome Can Co-occur With Asymptomatic LEMS

Symptoms of Fisher syndrome can lead doctors to also diagnose asymptomatic Lambert‐Eaton myasthenic syndrome (LEMS), according to a case study in Japan. The report, ... Read more

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June 4, 2018June 4, 2018

FDA Accepts Catalyst’s NDA for Firdapse with Priority Review Status for LEMS

News

The U.S. Food and Drug Administration has accepted Catalyst Pharmaceuticals’ new drug application (NDA) for Firdapse (amifampridine phosphate) for Lambert-Eaton myasthenic syndrome (LEMS), with priority review status. Firdapse is a formulation of amifampridine phosphate in development for the treatment of LEMS as ... Read more

Updates

Rare Skin Cancer Patient’s LEMS Symptoms Ease With Antibody Treatment

As a Parent, Determining When to Step in to Help Is a Challenge

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Fisher Syndrome Can Co-occur With Asymptomatic LEMS

Living Purposefully in Our New Normal

Recreational Therapy for LEMS Patients

Catching Glimpses of Goodness

Tube Feeding in LEMS: Will I Ever Need It?

Subscribe to our mailing list

Ice Pack Test Eased Eyelid Drooping in Man With LEMS, Case Report Finds

Digging for a Diagnosis

FAQs About Ruzurgi for LEMS

MDA Wants Neuromuscular Disease Patients to Have Early Access to COVID-19 Vaccine

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

FAQs About Firdapse as Treatment for LEMS

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

The Job I Never Wanted

How to Prepare for IVIG When You Have LEMS

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

FAQs About IVIG for LEMS

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

Rare Case of Lung Cancer-linked LEMS Underscores Importance of Screening

Sleep Hygiene for LEMS Patients

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

Firdapse Now Widely Available in Canada for Treating LEMS, KYE Pharmaceuticals Says

Brain Fog in LEMS

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Catalyst Given US Patent Covering Firdapse in Treating LEMS

Tips for LEMS Caregivers

NSF Funds Project to Make Better Computer Simulation of Nerve-muscle Communication

FDA Accepts Catalyst’s NDA for Firdapse with Priority Review Status for LEMS

Rare Skin Cancer Patient’s LEMS Symptoms Ease With Antibody Treatment

As a Parent, Determining When to Step in to Help Is a Challenge

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Palliative Care for LEMS

Fisher Syndrome Can Co-occur With Asymptomatic LEMS

Emotional Responses to a LEMS Diagnosis

Living Purposefully in Our New Normal

Recreational Therapy for LEMS Patients

Case Study Describes Cancer Immunotherapy Opdivo Leading to LEMS

Catching Glimpses of Goodness

Tube Feeding in LEMS: Will I Ever Need It?

Subscribe to our mailing list

Ice Pack Test Eased Eyelid Drooping in Man With LEMS, Case Report Finds

Digging for a Diagnosis

FAQs About Ruzurgi for LEMS

MDA Wants Neuromuscular Disease Patients to Have Early Access to COVID-19 Vaccine

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

We’re Staying Home for the Holidays

FAQs About Firdapse as Treatment for LEMS

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

The Job I Never Wanted

How to Prepare for IVIG When You Have LEMS

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

FAQs About IVIG for LEMS

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

Rare Case of Lung Cancer-linked LEMS Underscores Importance of Screening

Sleep Hygiene for LEMS Patients

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

Firdapse Now Widely Available in Canada for Treating LEMS, KYE Pharmaceuticals Says

Brain Fog in LEMS

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Catalyst Given US Patent Covering Firdapse in Treating LEMS

Tips for LEMS Caregivers

NSF Funds Project to Make Better Computer Simulation of Nerve-muscle Communication