The Canadian government has committed to invest CA$1.5 billion (about $1.1 billion) over three years to improve access to medicines and ensure better care for people with Lambert-Eaton myasthenic syndrome (LEMS) and other rare diseases. The effort, being called the National Strategy for Drugs for Rare Diseases, also aims…
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Our daughter Grace is more than three years out from her diagnosis of Lambert-Eaton myasthenic syndrome (LEMS). Until now, we’ve never met anyone in person who has LEMS. We’ve had wonderful friendships develop through Facebook groups, BioNews forums, Zoom town halls, and phone calls. But it’s not…
Catalyst Pharmaceuticals wants to increase the maximum recommended daily dosage of Firdapse (amifampridine), its Lambert-Eaton myasthenic syndrome (LEMS) treatment, to 100 mg. Plans are underway to ask the U.S. Food and Drug Administration (FDA) to approve the new dose, the company announced in a press release detailing its…
Columnist Lori Dunham offers words of hope and encouragement to those facing a diagnosis of Lambert-Eaton myasthenic syndrome.
Visit the Lambert-Eaton News forums to connect with others in the LEMS community.
Want to stay up to date on all the latest on LEMS? Click the link below to find more news and information.
Becoming educated and informed about LEMS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your LEMS journey.
There is no cure for LEMS yet, but there are treatments that can help manage the disease. Learn more about current therapeutic approaches here.
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