Six Signs of Chronic Fatigue in LEMS
Lambert-Eaton myasthenic syndrome (LEMS) is a rare autoimmune disease that affects the muscles, causing weakness. Many patients also experience chronic fatigue as a result ... Read more
Updates
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I Had Many Vague Symptoms Before My LEMS Diagnosis
As a Lambert-Eaton myasthenic syndrome (LEMS) patient, you might not have identified with the experiences that I described in my previous column. However, I’m ... Read more -
I’ve Been Diagnosed with LEMS – What’s Next?
Finding out that you have a rare disease can be frightening and confusing. Here are four tips to help you through a diagnosis of ... Read more -
Severe Scoliosis: My First Neuromuscular Disease Symptom
Most people look back on being 13 with fond memories of passage into their teen years. Those memories might include sleepovers, getting their ears ... Read more -
LEMS Followed Small-cell Lung Cancer Treatment with Opdivo and Yervoy, Case Report Shows
A new study describes the rare case of a man who developed Lambert-Eaton myasthenic syndrome (LEMS) following treatment with the immunotherapies Opdivo (nivolumab) and Yervoy (ipilimumab) ... Read more
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Tips for Managing Fatigue in LEMS
Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune disease characterized by muscle weakness. Many patients ... -
Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card
Oklahoma suffers more tornadoes than any other state, has the highest per-capita rate of ... -
Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate
Screening newborns for genetic diseases with treatments that can prevent crippling or deadly progression, ... -
As an ‘Invisible In-Between,’ I Frequently Experience Discrimination
If you have a neuromuscular disease like Lambert-Eaton myasthenic syndrome (LEMS) or another invisible ... -
Firdapse Oral Therapy Expected to Become LEMS’ Treatment of Choice, Review Says
Scientists believe Firdapse (amifampridine phosphate) will soon become first-line management therapy for Lambert-Eaton myasthenic ... -
FAQs in LEMS
A diagnosis of Lambert-Eaton myasthenic syndrome (LEMS) often leaves patients and their families with a ...
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FDA Accepts Catalyst’s NDA for Firdapse with Priority Review Status for LEMS
News
The U.S. Food and Drug Administration has accepted Catalyst Pharmaceuticals’ new drug application (NDA) for Firdapse (amifampridine phosphate) for Lambert-Eaton myasthenic syndrome (LEMS), with priority review status. Firdapse is a formulation of amifampridine phosphate in development for the treatment of LEMS as ... Read more