Columns, LEMme Tell Ya - a Column by Dawn DeBois ‘LEMme Tell Ya’ Patient Stories in Their Own Words: Will Schuller

Health Insights Will LEMS Affect my Life Expectancy?

News Rare Disease Film Festival Highlights Patient and Researcher Unity

Columns, LEMme Tell Ya - a Column by Dawn DeBois I’ve Got the Fire in My Soul

News Firdapse and Ruzurgi are Safe and Effective Options to Treat LEMS, Review Finds

Health Insights Tips for Managing Stress When You Have LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois I Felt a Sense of Camaraderie When Meeting My Fellow Myasthenia Patients

News Early Diagnosis Key in Managing Lambert-Eaton Myasthenic Syndrome, Review Study Says

FAQs FAQs About Chemotherapy and Radiation Therapy in LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois Putting My Fear of Needles to the Test

News Review Study Details Treatment Choices, Prognosis for LEMS

Health Insights How LEMS Differs From Myasthenia Gravis

Columns, LEMme Tell Ya - a Column by Dawn DeBois I’m Fortunate to Be the ‘Right Talent, Right Now’

Health Insights Anti-Inflammatory Diet to Reduce the Symptoms of LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois IVIG Is a Key to My Success with LEMS

News Elderly Patient Diagnosed With Rare Case of Thymus Gland Cancer and LEMS

Health Insights What to Expect During Plasmapheresis When You Have LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois ‘LEMme Tell Ya’ Patient Stories in Their Own Words: Price Wooldridge

Health Insights What to Expect During Physiotherapy for LEMS

News Amifampridines are Safe and Effective for Managing LEMS Symptoms, Review Suggests

Health Insights How Can Electromyography Help Diagnose LEMS?

News NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

Columns, LEMme Tell Ya - a Column by Dawn DeBois Children of ‘Rare Parents’ Give Me Hope

News Study Reports Rare Case of Tongue Muscle Atrophy in LEMS

Health Insights Tips for Managing Anxiety with LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois ‘LEMme Tell Ya’ Patient Stories in Their Own Words: Ashley Gregory

Health Insights Warning Signs of Depression in LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois Not All Superheroes Wear Capes

Columns, LEMme Tell Ya - a Column by Dawn DeBois My Mental Health Safety Net

News ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

Health Insights Tips for Making Every Doctor’s Visit Count When You Have LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois How Do You Tell Someone You Have a Disease They’ve Never Heard Of?

News At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

News Firdapse Active Ingredient 3,4‐DAP Targets Muscles in Rats, Has Long-Lasting Effect, Study Says

Health Insights 5 Tips for Developing a Treatment Plan for LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois Was My Fibromyalgia a Misdiagnosis?

News Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

Health Insights 6 Signs of Chronic Fatigue in LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois I Had Many Vague Symptoms Before My LEMS Diagnosis

Health Insights I’ve Been Diagnosed with LEMS – What’s Next?

Columns, LEMme Tell Ya - a Column by Dawn DeBois Severe Scoliosis: My First Neuromuscular Disease Symptom

News LEMS Followed Small-cell Lung Cancer Treatment with Opdivo and Yervoy, Case Report Shows

Health Insights Tips for Managing Fatigue in LEMS

News Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

News Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

Columns, LEMme Tell Ya - a Column by Dawn DeBois As an ‘Invisible In-Between,’ I Frequently Experience Discrimination

News Firdapse Oral Therapy Expected to Become LEMS’ Treatment of Choice, Review Says

FAQs FAQs About LEMS

Columns, LEMme Tell Ya - a Column by Dawn DeBois My Autoimmune Battle Has Brought Me Blessings in Disguise

News European Initiative Targets Diagnosis, Treatment of Rare Diseases

Columns, LEMme Tell Ya - a Column by Dawn DeBois My ACE Scores Are High. How About Yours?

News Merkel Cell Carcinoma Should Be Considered in Differential Diagnosis of LEMS Patients, Report Suggests

Columns, LEMme Tell Ya - a Column by Dawn DeBois Taking the First Scary Step After My LEMS Diagnosis

News Triple-Timed Up-and-Go Test Effective in Assessing LEMS Severity, Trial Analysis Shows

News World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

Columns, LEMme Tell Ya - a Column by Dawn DeBois As a LEMS Patient, I’m Concerned About the Ongoing IVIG Shortage

News Autoantibodies Against GRP78 May Underlie PCD in LEMS, Study Suggests

Columns, LEMme Tell Ya - a Column by Dawn DeBois ‘LEMme Tell Ya’ About Me and My Extremely Rare Disease

News NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News Catalyst Expands Firdapse’s License Coverage to Include Japan, Sues FDA Over Ruzurgi’s Approval

News Patients with SCLC-LEMS Easier to Diagnose, More Likely to Have Ataxia, Study Says

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

News Ruzurgi Approved in United States as First Treatment for Children with LEMS

News SCLC Patients with LEMS Have Better Long-term Survival, Study Suggests

News LEMS Prevalence in U.S. Similar to Europe, Large U.S. Study Reports

News Paraneoplastic Cerebellar Degeneration and LEMS Linked to Rare Throat Tumor, Case Report Shows

News Screening Leads to Simultaneous Lambert–Eaton Myasthenic Syndrome and Limbic Encephalitis Diagnoses, in Unusual Case Report

News Mouse Model of LEMS Provides New Tool to Develop Therapies

News Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

News Firdapse Found to be Effective for Lambert-Eaton Myasthenic Syndrome, Phase 3 Trial Shows

News WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

News Vienna to Host RARE2019 Meeting on Rare Diseases

News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News Repetitive Nerve Stimulation Test Could Be Useful to Diagnose LEMS, Myasthenic Crisis, Study Shows

News LEMS Patients Can Get Financial Aid from The Assistance Fund

News FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

News Lambert-Eaton Can Develop From Cancer Therapy Opdivo, Case Report Says

News, Recently Published Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News Firdapse Approved in U.S. for Adults with Lambert-Eaton Myasthenic Syndrome

News Anti-SOX2 Antibodies May Be Useful Markers of Small Cell Lung Cancer in LEMS Patients, Study Says

News Treatment with Lemtrada Caused LEMS in Relapsing-Remitting MS Patient, Case Report Shows

News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News Stimulated Single-Fiber Electromyography an Accurate Diagnostic Tool in LEMS, Case Report Suggests

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

News Fast, Noninvasive Triple-Timed Up-and-Go Test Can Assess LEMS Severity in Patients, Study Shows

News LEMS Associated with Small Cell Cervical Cancer and Breast Cancer in Case Study

News Diagnostic Test May Not be Highly Specific for LEMS, Study Warns

News Case Report Describes Patient with LEMS, Myasthenia Gravis, and Advanced Lung Cancer

News FDA Accepts Catalyst’s NDA for Firdapse with Priority Review Status for LEMS

News Cerebellar Ataxia in LEMS Patients May Be Due to Calcium Channel Autoantibodies, Study Finds

News LEMS May Coexist with Other Autoimmune Disorders in Cancer Patients, Case Study Finds

News #AAN2018 – LEMS Doesn’t Affect Long-term Survival of Patients Without Cancer, Study Finds

News Woman Develops LEMS Associated with Breast and Cervix Cancers, Case Study Reports

News Researchers Report Rare Case of LEMS with Mostly Eye Symptoms