Updates

September 21, 2020September 22, 2020
Planning for the Future After a LEMS Diagnosis

Receiving a diagnosis of a rare disease such as Lambert-Eaton myasthenic syndrome (LEMS) can be frightening. Here is some information that may help — ... Read more
September 16, 2020September 16, 2020
My Concussion Worsened Instead of Getting Better

Friday, Sept. 18 is National Concussion Awareness Day. To raise more awareness of how dangerous concussions can be, I’m sharing the most difficult experience ... Read more
September 14, 2020September 17, 2020
Raising Awareness of LEMS

Lambert-Eaton myasthenic syndrome (LEMS) is a very rare disease, with researchers estimating it affects about one person in every one million. Like many rare ... Read more
September 10, 2020September 10, 2020
Wait Between Repeat Nerve Stimulation Tests in LEMS, Researcher Advises

When monitoring Lambert-Eaton myasthenic syndrome (LEMS) patients, physicians should wait at least 150 seconds between nerve stimulation tests to avoid interference from prior exercise ... Read more
September 3, 2020September 3, 2020
Same But Different Photo Contest Celebrates People With Rare Diseases

Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography competition to raise awareness for ... Read more

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June 4, 2018June 4, 2018

FDA Accepts Catalyst’s NDA for Firdapse with Priority Review Status for LEMS

News

The U.S. Food and Drug Administration has accepted Catalyst Pharmaceuticals’ new drug application (NDA) for Firdapse (amifampridine phosphate) for Lambert-Eaton myasthenic syndrome (LEMS), with priority review status. Firdapse is a formulation of amifampridine phosphate in development for the treatment of LEMS as ... Read more

Updates

Planning for the Future After a LEMS Diagnosis

My Concussion Worsened Instead of Getting Better

Raising Awareness of LEMS

Wait Between Repeat Nerve Stimulation Tests in LEMS, Researcher Advises

Same But Different Photo Contest Celebrates People With Rare Diseases

Catalyst, KYE Agree to Commercialize Firdapse for Adult LEMS Patients in Canada

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Health Canada Approves Ruzurgi for LEMS Patients Ages 6 or Older

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Firdapse and Ruzurgi to Treat LEMS

Firdapse Approved in Canada to Treat People With LEMS

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New Streaming Channel Showcases Rare Disease Films

How to Make the Most of Our LEMS Forums

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Distinguishing Carpal Tunnel Syndrome and LEMS

Test Helps Assess Carpal Tunnel Syndrome in LEMS, Case Report Shows

LEMS and Clinical Trials

Should My Baby Be Tested for LEMS?

Scientists Validate New Tool for Estimating Cancer Risk in LEMS Patients

Vaccines and LEMS

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

LEMS and Anesthesia

Specific Response Pattern to Nerve Stimulation May Help Diagnose LEMS

Singer Lukas Nelson Convinced Me to Build a Simple Garden

Researchers Studying Cause of Autoimmune Diseases Awarded $1.95M Grant

Coalition Will Address Racial Disparities in Rare Disease Communities

Tips for Dealing With Pain When You Have LEMS

Autoantibodies Targeting GRP78 Protein May Cause PCD in LEMS

LEMme Tell Ya About the Unexpected Benefits of Medicinal Cannabis

Medications to Avoid When You Have LEMS

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

LEMS-associated Respiratory Problems May Lead to Heart Dysfunction, Case Report Shows

FDA Accepts Catalyst’s NDA for Firdapse with Priority Review Status for LEMS

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Planning for the Future After a LEMS Diagnosis

My Concussion Worsened Instead of Getting Better

Raising Awareness of LEMS

Wait Between Repeat Nerve Stimulation Tests in LEMS, Researcher Advises

Same But Different Photo Contest Celebrates People With Rare Diseases

Catalyst, KYE Agree to Commercialize Firdapse for Adult LEMS Patients in Canada

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Health Canada Approves Ruzurgi for LEMS Patients Ages 6 or Older

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Firdapse and Ruzurgi to Treat LEMS

Firdapse Approved in Canada to Treat People With LEMS

Subscribe to our mailing list

New Streaming Channel Showcases Rare Disease Films

How to Make the Most of Our LEMS Forums

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Distinguishing Carpal Tunnel Syndrome and LEMS

Test Helps Assess Carpal Tunnel Syndrome in LEMS, Case Report Shows

LEMS and Clinical Trials

Should My Baby Be Tested for LEMS?

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Scientists Validate New Tool for Estimating Cancer Risk in LEMS Patients

Vaccines and LEMS

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

LEMS and Anesthesia

Specific Response Pattern to Nerve Stimulation May Help Diagnose LEMS

Singer Lukas Nelson Convinced Me to Build a Simple Garden

Researchers Studying Cause of Autoimmune Diseases Awarded $1.95M Grant

Coalition Will Address Racial Disparities in Rare Disease Communities

Tips for Dealing With Pain When You Have LEMS

Autoantibodies Targeting GRP78 Protein May Cause PCD in LEMS

LEMme Tell Ya About the Unexpected Benefits of Medicinal Cannabis

Medications to Avoid When You Have LEMS

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

LEMS-associated Respiratory Problems May Lead to Heart Dysfunction, Case Report Shows

Pin It on Pinterest