Lambert-Eaton myasthenic syndrome stormed into our daughter’s life when Grace was just 15. Her friends were busy getting their driver’s permits, going to homecoming, and pursuing high school sports and various talents. They were going to parties and running on the beach. The contrast of Grace’s life was staggering.
Despite substantial self-reported muscle weakness and detectable abnormalities in nerve function tests, people with Lambert-Eaton myasthenic syndrome (LEMS) often show normal results on standard muscle strength tests, a new study highlights. Notably, normal muscle strength was significantly associated with a longer interval between symptom onset and diagnosis. In addition,…
Discussion
Note: This column describes the author’s own experiences with Firdapse (amifampridine), rituximab, and Mestinon (pyridostigmine). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. From my earliest memories, I have always loved reading. As a child, I would spend my summers…
Becoming educated and informed about LEMS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your LEMS journey.
There is no cure for LEMS yet, but there are treatments that can help manage the disease. Learn more about current therapeutic approaches here.
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