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Patients diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) with no identifiable cause should be continuously followed for signs of cancer, according to a recent case report. The researchers’ suggestion was supported by the case of a 64-year-old man who was diagnosed with LEMS at their clinic, and in whom lung…
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Misdiagnosis and delayed diagnosis are common among people with lung cancer-associated Lambert-Eaton myasthenic syndrome (LEMS), according to a small study in China. Most patients showed signs of LEMS before their lung cancer diagnosis — such as muscle weakness and problems in the autonomic nervous system, which controls involuntary functions such as…
A total of 30 patient advocacy groups working to further understanding and the needs of people living with rare diseases have been selected to receive a Horizon Therapeutics‘ #RAREis Global Advocate Grant. Winners of this year’s inaugural awards are spread across nine countries and represent a total of 29 rare…
In a deal that ends a three-year U.S. court battle over patent infringement claims for Lambert-Eaton myasthenic syndrome (LEMS) medications, Catalyst Pharmaceuticals will acquire the rights to the LEMS therapy Ruzurgi. Catalyst announced it has reached a settlement with Jacobus Pharmaceutical and PANTHERx Rare on its patent…
Columnist Lori Dunham and her family found ways to cope with the heat wave this summer while on vacation in Southwest Florida.
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Want to stay up to date on all the latest on LEMS? Click the link below to find more news and information.
Becoming educated and informed about LEMS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your LEMS journey.
There is no cure for LEMS yet, but there are treatments that can help manage the disease. Learn more about current therapeutic approaches here.
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