Updates

October 19, 2020October 19, 2020
Tips for LEMS Caregivers

A person who has a rare genetic disorder such as Lambert-Eaton myasthenic syndrome (LEMS) may require frequent help from caregivers to accomplish everyday tasks. ... Read more
October 15, 2020October 15, 2020
NSF Funds Project to Make Better Computer Simulation of Nerve-muscle Communication

A $750,000 grant from the National Science Foundation will fund a project to build a better computer model of the communication between nerves and ... Read more
October 12, 2020October 12, 2020
Independent Living for People With LEMS

Having a chronic condition such as Lambert-Eaton myasthenic syndrome (LEMS) can be particularly concerning if you are living alone. However, there are steps you ... Read more
October 8, 2020October 8, 2020
Newly Funded UNC Computer Simulations Could Help Find LEMS Treatments

An $86,880 grant from the National Science Foundation will support the development of computer simulations that aim to improve scientists’ understanding of the neuromuscular ... Read more
October 7, 2020October 7, 2020
Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their favorite photographs in a calendar ... Read more

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June 4, 2018June 4, 2018

FDA Accepts Catalyst’s NDA for Firdapse with Priority Review Status for LEMS

News

The U.S. Food and Drug Administration has accepted Catalyst Pharmaceuticals’ new drug application (NDA) for Firdapse (amifampridine phosphate) for Lambert-Eaton myasthenic syndrome (LEMS), with priority review status. Firdapse is a formulation of amifampridine phosphate in development for the treatment of LEMS as ... Read more

Updates

Tips for LEMS Caregivers

NSF Funds Project to Make Better Computer Simulation of Nerve-muscle Communication

Independent Living for People With LEMS

Newly Funded UNC Computer Simulations Could Help Find LEMS Treatments

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

How to Help a Family Member With LEMS

Ruzurgi Now Available in Canada for Patients Ages 6 or Older

How a Concussion Led to a Near-death Experience

Will LEMS Affect my Sex Life?

Planning for the Future After a LEMS Diagnosis

My Concussion Worsened Instead of Getting Better

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Raising Awareness of LEMS

Wait Between Repeat Nerve Stimulation Tests in LEMS, Researcher Advises

Same But Different Photo Contest Celebrates People With Rare Diseases

Catalyst, KYE Agree to Commercialize Firdapse for Adult LEMS Patients in Canada

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Health Canada Approves Ruzurgi for LEMS Patients Ages 6 or Older

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Firdapse and Ruzurgi to Treat LEMS

Firdapse Approved in Canada to Treat People With LEMS

New Streaming Channel Showcases Rare Disease Films

How to Make the Most of Our LEMS Forums

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Distinguishing Carpal Tunnel Syndrome and LEMS

Test Helps Assess Carpal Tunnel Syndrome in LEMS, Case Report Shows

LEMS and Clinical Trials

Should My Baby Be Tested for LEMS?

Scientists Validate New Tool for Estimating Cancer Risk in LEMS Patients

Vaccines and LEMS

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

LEMS and Anesthesia

Specific Response Pattern to Nerve Stimulation May Help Diagnose LEMS

FDA Accepts Catalyst’s NDA for Firdapse with Priority Review Status for LEMS

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Tips for LEMS Caregivers

NSF Funds Project to Make Better Computer Simulation of Nerve-muscle Communication

Independent Living for People With LEMS

Newly Funded UNC Computer Simulations Could Help Find LEMS Treatments

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

How to Help a Family Member With LEMS

Ruzurgi Now Available in Canada for Patients Ages 6 or Older

How a Concussion Led to a Near-death Experience

Will LEMS Affect my Sex Life?

Planning for the Future After a LEMS Diagnosis

My Concussion Worsened Instead of Getting Better

Subscribe to our mailing list

Raising Awareness of LEMS

Wait Between Repeat Nerve Stimulation Tests in LEMS, Researcher Advises

Same But Different Photo Contest Celebrates People With Rare Diseases

Catalyst, KYE Agree to Commercialize Firdapse for Adult LEMS Patients in Canada

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Health Canada Approves Ruzurgi for LEMS Patients Ages 6 or Older

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Firdapse and Ruzurgi to Treat LEMS

Firdapse Approved in Canada to Treat People With LEMS

New Streaming Channel Showcases Rare Disease Films

How to Make the Most of Our LEMS Forums

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Distinguishing Carpal Tunnel Syndrome and LEMS

Test Helps Assess Carpal Tunnel Syndrome in LEMS, Case Report Shows

LEMS and Clinical Trials

Should My Baby Be Tested for LEMS?

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Scientists Validate New Tool for Estimating Cancer Risk in LEMS Patients

Vaccines and LEMS

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

LEMS and Anesthesia

Specific Response Pattern to Nerve Stimulation May Help Diagnose LEMS

Pin It on Pinterest