Gary Chudd

It appears they want to dominate the market with Firdapse and edge out Jacobus out of business. Let Ruzurgi have a portion of the market. I wish there was a way I could get back on Ruzurgi, it worked better for me. They should allow patients that started on Ruzurgi be allowed to continue on it instead of being forced to change.

Price,
How did you feel after receiving IVIG, I’ve had it four different times, each was for four days and about 4 hours. The first time I got it I got such a severe migraine headache they reduced the dosage which helped. I also had it done twice at home which was more convenient and they gave me a lower dosage to prevent any headaches. Did you…[Read more]

<b>I was on DAP 3,4 for 3 years which I had it compounded at a pharmacy close to where I lived for $140 per month. I was then able to get on a trial study through CU medical in Denver for about 3 years with the same DAP3,4 until January of 2019 when the study wrapped up abruptly and was told a new drug Firdapse which I had to fight the insurance …[Read more]

I think I was about 50 when they finally diagnosed me with LEGS after many misdiagnoses.