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Gary Chudd replied to the topic Catalyst Requests FDA extend use of Firdapse to children in the forum Amifampridine (Firdapse and Ruzurgi) 1 year, 2 months ago
It appears they want to dominate the market with Firdapse and edge out Jacobus out of business. Let Ruzurgi have a portion of the market. I wish there was a way I could get back on Ruzurgi, it worked better for me. They should allow patients that started on Ruzurgi be allowed to continue on it instead of being forced to change.
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Gary Chudd replied to the topic Starting IVIG Immunoglobulin? My Routine and Tips in the forum IVIg and Plasmapheresis 1 year, 3 months ago
Price,
How did you feel after receiving IVIG, I’ve had it four different times, each was for four days and about 4 hours. The first time I got it I got such a severe migraine headache they reduced the dosage which helped. I also had it done twice at home which was more convenient and they gave me a lower dosage to prevent any headaches. Did you…[Read more] -
Gary Chudd replied to the topic The Efficacy of Firdapse, 3,4-diaminopyridine or 3,4-DAP, In Treating LEMS in the forum Amifampridine (Firdapse and Ruzurgi) 1 year, 7 months ago
<b>I was on DAP 3,4 for 3 years which I had it compounded at a pharmacy close to where I lived for $140 per month. I was then able to get on a trial study through CU medical in Denver for about 3 years with the same DAP3,4 until January of 2019 when the study wrapped up abruptly and was told a new drug Firdapse which I had to fight the insurance …[Read more]
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Gary Chudd replied to the topic What year where you diagnosed with LEMS? in the forum General Questions and Topics 1 year, 7 months ago
I think I was about 50 when they finally diagnosed me with LEGS after many misdiagnoses.
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Gary Chudd became a registered member 3 years, 4 months ago
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Gary Chudd's profile was updated 3 years, 4 months ago
Welcome to the Lambert-Eaton News Forums, Gary! We are happy to have you join us! Your story in your profile is quit scary- having surgery to try to alleviate leg weakness that ended up really being caused by LEMS, wow! Please read the Using Our Forums post by forums Director, Kevin Shaefer. We also have a Ruzurgi forum that you can pose your…[Read more]