Biography

I’m now into my third year come this April 2020 with L E M S. Still trying to come to terms with my unpredictable condition that has severely affected all aspects of my life. At this point in time my condition seems moving into reverse. My consultant is now considering another set of infusion. I’ve come off steroids . Still on 3/4 Dep. Pyridostigmime Bromide , Micophenolate Mofetil and Alendronic Acid. So unable to get out of bed until 3/4 dep has infused, chronic tiredness, and pauses or freezing in body motion. With a condition which 99.9 of doctors are unaware of it very hard to explain non medical s what my conditions intales. So in appearance most people say how “ Well “ look but under the surface it’s like an aftermath of controlled explosion