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Heather

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@heatherbluephoenixart-com

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    Heather replied to the topic LEMS zoom meetings are returning! in the forum LEMS Community Zoom Socials 3 weeks, 5 days ago

    That’s today at 2 pacific? If so I would love to join, tho I can only stay on for a few minutes

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    Heather started the topic Driving issues? in the forum Living With LEMS 4 months, 4 weeks ago

    Im trying to assess the problem I am having with driving and I assume that a few folks might have some insight!!  The muscle weakness in my legs and core is really bad.

    I am getting a fullset of spinet brain MRIs tomorbut it looks like LEMS. My legs are “burned out” as soon as I walk down the hall to my doctor’s office from handclap parking. I…[Read more]

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    Heather replied to the topic Getting a Port for IVIG Immunoglobulin Infusions in the forum IVIg and Plasmapheresis 4 months, 4 weeks ago

    I’m back to the same question as I am having another flare of LEMS after having it fairly controlled for the last two years.  I also have an immune deficiency so I need to keep that in mind.

    when I have done ivig for LEMS my dose is much higher than for immune deficiency.  I assume that’s the case for others too.  This time my neurologist is cons…[Read more]

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    Heather became a registered member 5 months, 2 weeks ago

    • Profile picture of Ashley Gregory
      Ashley Gregory replied 5 months, 2 weeks ago

      Hey Heather!

      Welcome to the Lambert-Eaton News forums @heatherbluephoenixart-com !
      My co-moderator @pricewool and I are so happy you have joined our community!

      We have members from all over the world with LEMS and have a ton of information to offer! I would love to hear more about your experience with LEMS!

      Please take a moment to read the Usin…[Read more]

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