@heatherbluephoenixart-com
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Heather replied to the topic LEMS zoom meetings are returning! in the forum LEMS Community Zoom Socials 3 weeks, 5 days ago
That’s today at 2 pacific? If so I would love to join, tho I can only stay on for a few minutes
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Heather started the topic Driving issues? in the forum Living With LEMS 4 months, 4 weeks ago
Im trying to assess the problem I am having with driving and I assume that a few folks might have some insight!! The muscle weakness in my legs and core is really bad.
I am getting a fullset of spinet brain MRIs tomorbut it looks like LEMS. My legs are “burned out” as soon as I walk down the hall to my doctor’s office from handclap parking. I…[Read more]
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Heather replied to the topic Getting a Port for IVIG Immunoglobulin Infusions in the forum IVIg and Plasmapheresis 4 months, 4 weeks ago
I’m back to the same question as I am having another flare of LEMS after having it fairly controlled for the last two years. I also have an immune deficiency so I need to keep that in mind.
when I have done ivig for LEMS my dose is much higher than for immune deficiency. I assume that’s the case for others too. This time my neurologist is cons…[Read more]
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Heather became a registered member 5 months, 2 weeks ago
Hey Heather!
Welcome to the Lambert-Eaton News forums @heatherbluephoenixart-com !
My co-moderator @pricewool and I are so happy you have joined our community!
We have members from all over the world with LEMS and have a ton of information to offer! I would love to hear more about your experience with LEMS!
Please take a moment to read the Usin…[Read more]