Jessica Jones replied to the topic Getting weaker and weaker on Firdapse in the forum Using Our Forums 1 week, 5 days ago
I also do not like Firdapse as well as Ruzurgi… And I have tried Cellcept, but it has been years. I didn’t notice any improvement on it. The only immunosuppressant that has been effective for me is Rituxan. I take it in conjunction with IVIG and. These, along with oral Mestinon and Firdapse have my condition pretty well controlled.
Jessica Jones replied to the topic Would you participate in a clinical trial? in the forum General Questions and Topics 2 weeks, 5 days ago
I know someone diagnosed with MG who uses Vyvgart and it works very well for him, but MG and LEMS are different fundamentally, so I’d be interested to know the biochemistry behind how they expect Vyvgart to work for LEMS and MG both effectively. I have finally achieved balance with my current treatment and am stable, so it would be difficult for…[Read more]
Jessica Jones became a registered member 1 year, 11 months ago
@jessjones21 Hi Jessica! On behalf of myself and fellow moderator, @ashleygregory757, welcome to our forums.
When you have time please look around our topics, read the forum rules, and contribute as you feel the need.
I read your bio! What a difficult journey! I’m so glad you finally got the diagnosis and are in a much better place. For me i…[Read more]