| Short Bio |
After a ten-year journey, several mis-diagnoses, and having to stop teaching, I was finally diagnosed with LEMS at age 53. Over the past few years, my symptoms have really begun to impact my quality of life, especially my ability to walk, but I get some relief from Rituxan infusions and more recently, IVIg. I am starting subcutaneous infusions soon. I am eager to connect with and learn from others who have LEMS and try to stay positive despite our rare and challenging disease. I enjoy my two Labrador pups, caring for my plants, reading, music, and nature in Oregon with my husband.
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| How long have you or the person that you are caring for had LEM? |
Increasing symptoms for the past decade; diagnosed 2 years ago
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