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carol Oliver replied to the topic What Can I expect in the forum Using Our Forums 2 months, 2 weeks ago
Hi Brian
i have my medicine marijuana card. I’m curious, what is your system that you developed that helps you with lems. I understand the sativa vs indica application but any other tips ? Thanks
carol
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carol Oliver replied to the topic Walking with LEMS (video) in the forum Living With LEMS 3 months, 4 weeks ago
Hi
thanks for reminding us that it’s very important to have a calm peace within ourselves to help max out positivity Not just for us lems people but all people
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carol Oliver replied to the topic Do you receive IVIG at home? in the forum IVIg and Plasmapheresis 4 months, 1 week ago
Hi I’ve been getting ivig at home for about 2 years. My first 3 infusions were in the hospital setting but it was my insurance that said to set up home infusions because it’s cheaper. I have a great specialty pharmacist and always the same nurse. It’s great infusing at home. Less hassle and more comfortable I would think your insurance company…[Read more]
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carol Oliver replied to the topic Looking for advice on rituximab treatments in the forum Rituximab (Rituxan) 4 months, 3 weeks ago
Hi
i am currently getting rituximab every 6 months for the last 18 months and my next infusion is in December. I take Firdapse and monthly ivig. Since starting the rituximab I have seen continuous improvement. I still have some walking disability but most of my dysautomonia symptoms have subsided or reduced immensely I wish I could say that I…[Read more]
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carol Oliver became a registered member 1 year, 8 months ago
@lakewinola yes Carol, welcome! Another young LEMS patient I’m aware of recently went on Rituxan and has had terrific results. Hopefully, as that treatment is established, you will improve! Keep Ashley and I posted!