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  • DCarpenter

    Member
    January 26, 2022 at 2:03 pm in reply to: How Long To Get Your LEMS Diagnosis?

    I was fortunate to be diagnosed within 4 months.  Initially, I was seen by a Washington DC neurologist, who did an array of tests trying to determine a diagnosis.  Before she could finalize the diagnosis, I was unable to swallow, and she referred me immediately to Johns Hopkins in Baltimore, where I was hospitalized and prescribed IVIG, Firdapse, and rehabilitation. I transferred my care back to a neurologist at George Washington University hospital, who added Mestinon and Cellcept.  I continue to be followed locally by him because of his expertise.

     

  • DCarpenter

    Member
    August 3, 2021 at 8:32 pm in reply to: LEMS Meet & Greet next week!

    I plan to attend.  thanks

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