| Short Bio |
After over four years of seeking a diagnosis for my symptoms, I was diagnosed with LEMS in September of this year. I still have other testing to do for other issues, but have started taking one medication and have felt a small amount of relief. Over a year ago I had to leave my job as a school principal because I was so weak and could no longer do my job . I am grateful to have access to the stories and answers of other folks that are living with us syndrome.
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| How long have you or the person that you are caring for had LEM? |
Four years plus
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