@scoobydoo1963
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michael replied to the topic Our next LEMS zoom meeting! in the forum LEMS Community Zoom Socials 1 week, 1 day ago
yes i started rituxan and took it twice. it made me sick a week later . is that normal? and how do i know if it is working? i am still take the 4 day ivig. firdapse and so many other meds for this disease. is that normal?
my question? how many medicines do we actually need? this will be my first zoom meeting if i figure out how…[Read more] -
michael started the topic LIVING WITH LEMS AND CANCER in the forum Introductions 1 week, 1 day ago
Hi, everyone, my name is Michael Dube I was diagnosed a year ago with LEMS and Small cell lung cancer. My cancer is in remission, but my LEMS is not. I currently take the IVIG. the doctor ordered another IV Rituxan. i already took it twice this month of July 2022. This second iv made me sick at my doctors appointment. when i arrived,…[Read more]
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michael became a registered member 4 months, 3 weeks ago
Hey @scoobydoo1963
Welcome to the Lambert-Eaton News forums Michael !
My co-moderator @pricewool and I are so happy you have joined our community!
We have members from all over the world with LEMS and have a ton of information to offer! I would love to hear more about your experience with LEMS! I’m sorry to hear you also have SCLC. How has your…[Read more]