This was a very sad week for me. I learned that my amazing rheumatologist, Dr. Asha Shrestha, is moving. I…
Dawn DeBois
When Dawn was diagnosed with Lambert-Eaton Myasthenic Syndrome in 2016, she realized how lonely it was not having anyone to talk to that understood her illness. Her goal with 'LEMme Tell Ya' is to let that be a conversation about LEMS that other patients can look forward to each week. Dawn will share her own stories of being a LEMS patient and one who also deals with having an invisible illness along with multiple autoimmune diseases. Dawn's prior work experience in pharmaceuticals and public health education is what led to her desire to educate others about her ultra rare diagnosis of LEMS. This desire, combined with her love of writing, led to her blog, The Battle Within. Dawn is also a contributor for TheMighty.com. When able to, Dawn volunteers for various pet rescue organizations. She has three adult sons and resides in Maine with her own rescues: a pug, Rocky, a beagle mix, Anna, and two cats, George and Wylie.
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Articles by Dawn DeBois
While Rare Disease Day events spanned the globe, I came across paperwork that reminded me of how difficult it…
As I look forward to Rare Disease Day, it is not lost on me that five short years ago…
I have completed my first month on Hizentra (immune globulin), and I am ready to share my experience.
I don’t think there is a rare disease patient on the planet who doesn’t harbor some hurt deep in their…
People often comment that there aren’t enough days in the week or hours in the day. But I’ve found myself…
Winning at Bionews Services
Those of you who follow my Instagram or Facebook pages may have noticed that I was in Philadelphia…
It’s a new year and the beginning of a new decade. Photos have been popping up all over social media,…
This has been a year of firsts for Lambert-Eaton myasthenic syndrome (LEMS) patients. Two medications approved by the…
When I published my first blog post for “The Battle Within,” I was thrilled to receive a comment from…