Recent Posts
- LEMS community makes strides in spreading disease awareness December 4, 2023
- What a difference 4 years have made in fighting Lambert-Eaton November 20, 2023
- My daughter decides how much to share about her LEMS November 13, 2023
- 2 more US patents expected for Catalyst’s Firdapse in next 2 months November 7, 2023
- Learning to slow down was key to managing our daughter’s LEMS October 30, 2023
- Taking care of myself: A lesson learned while taking care of others October 23, 2023
- FDA will consider request to raise Firdapse’s maximum daily dose October 17, 2023
- Going to the mall, and other activities I thought we’d lost forever October 16, 2023
- Hurtful comments triggered ‘mom guilt’ I didn’t deserve October 9, 2023
- Support for rare disease universal health coverage sought in UN October 3, 2023