News

LEMS diagnosed in woman with other autoimmune conditions

A 56-year-old woman was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) after having been earlier diagnosed with other autoimmune conditions, a U.K. case study reports. The woman’s previous conditions included neuromyelitis optica spectrum disorder (NMOSD), which primarily affects the spinal cord and optic nerve, which sends and receives signals…

MDA Clinical & Scientific Conference starts on March 16

Note: This story has been updated March 6, 2025, to correct a quote from Mindy Henderson, MDA vice president of disability outreach and empowerment. The Muscular Dystrophy Association (MDA) is once again hosting its annual gathering, the MDA Clinical & Scientific Conference. The 2025 event will take place…

Firdapse oral therapy now available to LEMS patients in Japan

Firdapse (amifampridine), an approved oral treatment for Lambert-Eaton myasthenic syndrome (LEMS), is now available to people in Japan with the rare autoimmune disease. The therapy, available in the form of 10 mg tablets, was launched by Dydo Pharma. Dydo is responsible for the development and commercialization…

NORD offering financial support program to cover LEMS costs

The National Organization for Rare Disorders (NORD) is offering a financial support program to aid people with Lambert-Eaton myasthenic syndrome (LEMS) and their caregivers. The LEMS Patient Assistance Program can provide financial support to cover out-of-pocket healthcare costs linked directly to treatment and care for the autoimmune disease, according…

Firdapse approved to treat LEMS patients in Japan

Firdapse (amifampridine) has been approved in Japan to treat people with Lambert-Eaton myasthenic syndrome (LEMS). The therapy will be supplied in the form of oral tablets containing 10 mg of amifampridine, according to Catalyst Pharmaceuticals, the company that holds Firdapse’s licensing rights in North America. In collaboration with…