Stretcher-Bearers – a Column by Lori Dunham

Lori Dunham and her family have lived all over the world, thanks to the U.S. Navy. She and her husband have three children and currently live in North Florida. At age 14, their daughter was diagnosed with the rare disease Lambert-Eaton myasthenic syndrome. Lori’s mission in writing is to inspire and encourage those who find themselves in the role of caregiver to a loved one with a rare disease. When she is not writing or homeschooling her two youngest, Lori enjoys reading, baking, and spending time with family.
April 7, 2025 Columns by Lori Dunham

The need to make connections in the LEMS community

I’m a product of the 1970 and ’80s. We grew up with big hair, neon fashion, and the rise of music videos on MTV. I can remember sleeping on the floor of our family car more times than I can count while going on vacation. Seat belts were practically nonexistent.

February 3, 2025 Columns by Lori Dunham

How a simple tendon reflex test indicated a major problem

No two stories are quite the same — particularly among those living with Lambert-Eaton myasthenic syndrome (LEMS). When our daughter Grace was diagnosed with the condition at age 15, I was desperate to find a story similar to hers. I needed to see what LEMS looked like in someone…

January 13, 2025 Columns by Lori Dunham

Managing the medical anxiety triggered by a single phone call

It started with a phone call. Our daughter Grace, who was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) at age 15, was due for her annual neurology appointment. Things had been pretty quiet with her health since her treatment plan was implemented almost four years ago. Grace has responded…

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