Lambert-Eaton News Community Forums Living With LEMS Does alcohol exacerbate your LEMS symptoms?

  • Does alcohol exacerbate your LEMS symptoms?

    Posted by Community Member on August 27, 2024 at 7:24 am

    Hi guys!

    Aside from the heat, there are a few known triggers for a “LEMS flare.” For me, stress is a huge one! I’ve heard that some of us are affected by drinking alcohol and that it can worsen our symptoms.

    I thought it would be best to ask all of you if alcohol seems to be a trigger for you.

    How do you tolerate an alcoholic beverage? Does it exacerbate your LEMS symptoms?

    Community Member replied 4 Members · 6 Replies
  • 6 Replies
  • Community Member

    Member

    Several years ago I learned I needed to complete the bulk of my projects and chores for the day by mid afternoon as by then my muscles are close to letting me down for that day. Something that has helped me finish out the day with light duty is to drink one (1) 12 oz can of beer around 4 or 5 P.M. It really relaxes my muscles and reduces the aching and tingling, at least long enough for me to get through the dinner routine and to bed early!

    • Community Member

      Member

      Hey @Dorothy Dempsey ! I also find that I am more productive in the middle of the day! By 3, I am usually pretty fatigued. I also found that once I sit down, I relax and crash, so I have to keep moving in the day if I need to stay active.

      I can totally see why beer could help relieve some of your pain! I’m glad you found a routine and something that works for you!!

  • Community Member

    Member

    Hi Ashley I have not been able to drink alcohol since my diagnosis, it exacerbated my GI problems and made me feel bad overall—yet another thing I must avoid. Deborah

    • Community Member

      Member

      Hi Deborah! I’ve also found that alcohol can trigger my LEMS as well. I can usually get by having a glass or half glass of wine, but I find if I have more than one, then I am rather sluggish and weak the following day!

  • Community Member

    Member

    Hello,

    I have found when I have a glass of wine I get sluggish and wake up in middle of night with major leg muscle spasms. Thus, I have refrained from drinking.

    • Community Member

      Member

      Hey Fritz! Thanks for sharing your experience with us! It also makes me feel sluggish!

Log in to reply.