Lambert-Eaton News Community Forums Diagnosed: What now? How Do You Tell Someone You Have a Disease They’ve Never Heard Of?

  • How Do You Tell Someone You Have a Disease They’ve Never Heard Of?

    Posted by MG Community Member on January 10, 2020 at 9:34 am

    When trying to explain her ultrarare disease, Dawn DeBois tries to relate it to something her provider is already familiar with. Find out more about how she does it here.

    How do you explain LEMS to people who aren’t familiar with the disease?

    MG Community Member replied 6 years, 2 months ago 0 Member · 0 Replies
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