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  • In the News

    Rare Disease Survey Seeks to Assess Full Social, Economic Burden in US

    Posted by Forum Moderator on July 15, 2020 at 11:06 am

    The EveryLife Foundation for Rare Diseases has launched the National Burden of Rare Disease Survey to measure the full economic and social cost in the U.S. Read more about it here.

    Have you or will you participate in the survey?

    Forum Moderator replied 3 years, 9 months ago 0 Member · 0 Replies
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