As mentioned in my previous topic, there is a drug in pre-clinical study for LEMS that may, at some point, do a full clinical trial for FDA approval. The drug is efgartigimod.
Here are some additional factors to think about before saying yes, or no.
Will I receive the investigational drug or a placebo?
How will the treatment be given to me? (e.g. pill, injection, infusion)
How long will I receive the treatment?
Will I have to stop my current treatment?
What tests and treatments will I have to undergo?
I ask the question again, given that LEMS patients will be asked to participate in these trials. Have you considered whether you might opt in?