DHM
Forum Replies Created
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I’d love to try the watch.
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Has anyone tested with elevated liver enzymes? I have had one double snd one triple in 5 months. The report from the Firdapse trials did report 14% of participants experienced this. I was told to take milk thistle by a PA and did not get a reply from my neurologist with this concern. Has anyone else had this issue? Not sure how worried I should be. I have been on Firdapse 10 months.
I also have very heavy legs and back when getting up from a sitting position. Is this a normal part of LEMS? -
Happy , happy birthday! The older the violin the sweeter the music. May you have a healthy happy year!
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Thank you Ashley and Price for the quick replies of useful info. I’ve decided I’ll go in the girls beach trip and definitely pace myself and listen to my body.
Do you have any tips for conversations with your neurologist? I write down my questions but there is never enough time to discuss another topic that might be sparked by his reply. Is 30 minutes the standard appt. with this professional?
how is it determined if PT or aqua therapy is needed ?
Price I know you have talked about your medication routine. I am taking Firdapse and Mestinon ( generic) but how does one determine if this is as good as it gets? I have tweaked it some but still don’t know what level of relief is acceptable. How would you describe a flare up? Thank you! I appreciate you both answering my questions.a
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Hello,
Would anyone recommend a beach trip for a LEMS patient?
Another topic which may have been discussed before my diagnosis is about foods to avoid and foods that may build muscles.
Thank you any info.