Forum Replies Created

  • Jerry Hirsch

    Member
    April 11, 2020 at 8:21 am in reply to: Immunoglobulin Reaction in these pandemic times

    Wow Price, sounds like you had a rough week. I was on IVIG for 2 months, and I was told that it could take up to 8 months to notice an improvement in my LEMS symptoms. I didn’t have any allergic reactions while getting the IGI at a large infusion center administered by The Cleveland Clinic. Then the COVID-19 became a major issue in our country, and considering my age, immune suppressant condition, and underlying health issues, I was hesitant about exposing myself in a clinic full of “sick” people for an average of 5 hours, 2 days in a row, every month. Then, following Dawn’s articles about how much she praised SCIG, (after “fighting” with my insurance company to get it approved, after denied it, I started weekly Subcutaneous injections 3 weeks ago, in the safety and comfort of my home. For the first session a nurse came to my home to show me how (a lot of steps, but well written instructions) it’s done, as she did all of the work. The 2nd week she came back to “walk me” through the process, and yesterday (my 3d session) she came back just to watch that I was able to do it on my own. I passed the test, so I’m set at home, from where I’m self quarantined. Thank god for NETFLIX and Amazon Prime video.
    Take care, and I hope you’re feeling better by now, and somehow can enjoy Easter tomorrow.