Ann
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I am very glad to hear that some people experience pain. I say I have pain in my legs and get told there is no pain with LEMS. I know my weakness is mainly mornings but there is some at times thru out the day too.
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Ann
MemberApril 30, 2021 at 10:32 am in reply to: MedicAlert, NORD Team Up to Help LEMS, Other Patients in EmergenciesI have one question. Is NORD available in Canada or is this an organization that deals with the US only?
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I live in Owen Sound, Ontario, Canada and was diagnosed December 2017.
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I have occasional muscle cramping now, I use to get a lot of them. I have tried Quinine in the past with limited results. My doctor put me on Lyrica for cramps and nerve pain as I am also diabetic. We use to have a fellow at work that use to get really bad cramps. His doctor suggested taking 3 – 4 TUMS at night and it did help him. I tried it and it really does help. Also are you on anything for elevated Cholesterol. I at one time had been on both Lipitor and Esetrol. I got bad cramps because of the Lipitor but did the cramps ever intensify with the Esetrol. I am now on Crestor and don’t cramp like I did.