Forum Replies Created

  • Tim

    Member
    March 14, 2023 at 6:14 pm in reply to: Hello, just diagnosed.

    Thank you Brian and Lori! I will join a Facebook group too.

    My neurologist is a bit surprised it seems but also pleased that the pyridostigmine is working for me. I expect Firdapse would probably be better but I don’t think it’s in the cards unless pyridostigmine stops working.

    It is a very weird thing…like 99.9999% of people will never have an issue like this but then it’s randomly triggered by something. Won the lottery!

    My neurologist just prescribed the XR pyridostigmine for night too, after I said that I’m happy with the pyridostigmine but still have trouble getting started in the morning. I’m glad there are multiple medications that can help with this, even if the best one is not for me.

    Thanks again for the warm welcome.