[Patricia Lempert]

Hello Ashley ,

Thank you for reaching out , I truly appreciate it . stay safe

[Patricia Lempert]

Hello Price

Good afternoon ,

I appreciate you reaching out and providing the information, unfortunately I saw Dr Geraci long time ago for a second opinion and he unfortunately told me he didn’t think I had LEMS LOL ?

Strange as it would be or sounds I have tested positive for LEMS for years , Actually Mine is the P/Q subtype.

I was first diagnosed by Dr Gudesblatt at South Shore Neurologic ruffley  8-10 years ago.

I absolutely loved this Dr until he sadly  left me completely vulnerable and ill to say the least .

That is why I reached out to the Department of Health , I simply had enough .

I went to Dr Geraci for a second opinion so I don’t know much more to say about WHO specializes in this Disease .

I will keep doing what it is I have for over 10 years now which is take care of myself unfortunately to the best of my ability since I have been left to fly solo.

Besides theses two Drs I mention there is truly no one else who knows how to treat me here on Long Island & that is really sad.

But thank for being here & just for the record I did reach out to  Firdapse when I was on this medication , Even spoke to a patient advocate explaining that this Dr is NOT monitoring me at all & truth be told NOTHING was done about.

So now I have no Dr, No medication to control my LEMS and no support out here sorry to say .
Im completely Grateful for your forum as you can tell it gave me a chance to get it off my chest LOL

Thank you