Living With LEMS

Overview

Lambert-Eaton myasthenic syndrome (LEMS) is a rare autoimmune disorder that affects the nerve cells controlling muscle movement. This disease is characterized by muscle weakness, mainly in the lower limbs. Patients also experience fatigue, muscle stiffness, pain, facial weakness, drooping eyelids, and problems with swallowing.

LEMS can affect many aspects of a person’s life, but certain coping strategies, as well as aids and adaptations, may help improve quality of life and assist patients with everyday tasks.

Aids and Adaptations

LEMS causes muscle weakness, which can affect mobility. Patients may need aids and adaptive devices to help with mobility and performing daily activities. To learn more about the kinds of aids and mobility devices your doctor may recommend, click the link below.

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Anxiety and Depression

Anxiety and depression are commonly experienced by patients with LEMS. Anxiety can make a person feel tense, restless, and apprehensive, while depression affects mood and key daily life activities such as thinking, sleeping, and eating. To learn more, click the link below.

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LEMS and Sexuality

Sexual dysfunction is a LEMS symptom that is not frequently mentioned but can affect both sexes. Men with LEMS mainly experience erectile dysfunction or impotence, and women a decrease or loss of sex drive. To learn more, click the link below.

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Prognosis

There are several factors that may affect the prognosis of LEMS, including symptom severity and the presence of cancer. The life expectancy of LEMS patients without underlying cancer is typically normal. The progression of LEMS is usually slow, and symptoms worsen months after onset. To learn more, click the link below.

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