Stretcher-Bearers — Lori Dunham

A few weeks ago, I wrote about our daughter’s desire to get a summer job. I was overwhelmed with the limitations that Grace faced in her job search, knowing she can’t work a typical job for teenagers like…

I have spent most of my life in a rush. As someone with a Type A personality, I love to be organized and manage my time efficiently. A great day for me is full of activities and to-do…

Our family loves to travel. Thanks to the military, we have spent years raising our kids in places like Singapore, Thailand, and Italy. We have loved our visits to monasteries in Germany; castles in Austria; beaches in Indonesia, Malaysia,…

“I alone cannot change the world, but I can cast a stone across the waters to create many ripples.” — Mother Teresa  In my experience, if someone claims that you can’t make a difference in…

As the days slowly lengthen and stretch before us, I am faced with new challenges caused by Lambert-Eaton myasthenic syndrome (LEMS) and the limitations it places on our 16-year-old daughter, Grace.  After a year gone…

Recently, I wrote about our family’s periodic need to assess medication protocol. This helps us figure out what is and isn’t working. I am a caretaker of our 16-year-old daughter, Grace, who has Lambert-Eaton myasthenic syndrome…

Most people in the rare disease community can relate to the constant march to various doctors in our quest to manage our health, or that of a loved one. Our doctors are invaluable. If…

It seems that Lambert-Eaton myasthenic syndrome (LEMS) likes to keep us guessing. Two years after our daughter Grace’s diagnosis, we are still learning how the disease affects her.  On many days, we feel that Grace…

For the first year after our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS), our schedule was filled with doctors’ appointments. Referrals to neurologists, rheumatologists, dietitians, and physical therapists abounded. Add in monthly…

As the mom of a 16-year-old daughter with a rare disease, I’ve had to learn how to accommodate Grace’s limitations. Many daily activities became much harder after she was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). My…

If anyone had told me three years ago how our life would look today, I would not have believed them. I never thought I’d be caring for a child with a rare disease. It is exhausting,…

We are living in unprecedented times involving a pandemic and political and social unrest that has been debated in many homes and communities.  Even amid all the disagreement and opposing views, I think most…