Parenting comes with the danger of holding on to a lot of regret. As our kids grow up and move into adulthood, we can fall into the trap of blaming ourselves for all kinds of things they encounter. That was definitely the case when our daughter Grace was diagnosed…
Stretcher-Bearers — Lori Dunham
Lori Dunham and her family have lived all over the world thanks to the U.S. Navy. She has a degree in human resources but enjoys writing to encourage and inspire others. When her daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome at age 15, Lori sought community and encouragement from those walking a similar path. Lori’s mission in writing is to inspire and encourage those who find themselves in the role of caregiver. When she is not writing or homeschooling her two youngest, Lori enjoys reading, baking, and spending time with family. Currently they live in Jacksonville, Florida.
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I often think about the phrase “no news is good news” when I haven’t heard from my son in a while. He lives across the country, and if he has a problem or needs to discuss something, I know he’ll call me. If I don’t hear from him for a…
Change is inevitable. Life won’t look the same tomorrow as it did yesterday, that’s for certain. Those of us in the Lambert-Eaton myasthenic syndrome (LEMS) community know that all too well. We understand what it feels like to have our world upended by a rare disease diagnosis. When…
It’s that time of year again: the dreaded cold and flu season. I’ve never been more aware of it than I am today. Yes, I’m older than I once was, and sickness seems to hit me harder and last longer than it did in my younger years. However, it’s not…
There are things in this life that amaze me. The generosity of a stranger and random acts of kindness rejuvenate my view of mankind. The family that chooses to march forward in hope after the loss of a child is a sacred thing to see. It’s in these moments that…
Once a month, Anovo pharmacy calls to refill my daughter Grace’s prescription of Firdapse (amifampridine). The conversation doesn’t vary from month to month. First, they’ll inform me the call is being recorded. Next, they’ll confirm some personal information. Finally, they’ll ask if Grace has missed a dose since…
At the start of each new year, I do the same dance as many of you. I examine the year we’ve just left behind and intentionally pursue change in certain areas of my life. Exercise more. Eat healthier. Learn a new hobby. Some of these resolutions stick. Others are long…
Some memories are so special that you know they’ll be held close to your heart for all time. For me, one of those memories was when we heard our daughter Grace laugh for the first time. It happened the day after we met her in a government office in…
“Life was like a box of chocolates. You never know what you’re gonna get.” — Forrest Gump, in the film of the same name Most would agree that life can be unpredictable. Our family certainly didn’t expect that our daughter Grace would face the onset and diagnosis…
When our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) at age 15, I thought our lives would never be the same again. Her life, and ours, seemed to come to a screeching halt. LEMS interrupted and restructured our daughter’s active life. Everything changed to accommodate her…
For most of my life, I’ve been an open book. I tend to trust people quickly and make fast friends. That’s partly out of necessity, as I’ve been a military wife for most of my adulthood and military families tend to settle in quickly. In my case, that tendency also…
My childhood memories hold a lot of special moments: our first family trip to Disney World, summers at the Jersey Shore, fun family celebrations. But mostly, I remember the mundane parts of family life. In those moments, we learned valuable life skills. Some of my earliest memories are of my…
As far back as I can remember, I wanted to be a mom. Sure, I had other interests, hobbies, and ambitions, but my deepest and most meaningful dreams were about motherhood. I not only loved mothering, but I was often called upon to parent solo when my husband was deployed…