I’m a product of the 1970 and ’80s. We grew up with big hair, neon fashion, and the rise of music videos on MTV. I can remember sleeping on the floor of our family…
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Change is inevitable. Life won’t look the same tomorrow as it did yesterday, that’s for certain. Those of us in the Lambert-Eaton myasthenic syndrome (LEMS) community know that all too well. We…
It’s that time of year again: the dreaded cold and flu season. I’ve never been more aware of it than I am today. Yes, I’m older than I once was, and sickness seems to…
There are things in this life that amaze me. The generosity of a stranger and random acts of kindness rejuvenate my view of mankind. The family that chooses to march forward in hope after…
Once a month, Anovo pharmacy calls to refill my daughter Grace’s prescription of Firdapse (amifampridine). The conversation doesn’t vary from month to month. First, they’ll inform me the call is being recorded.
At the start of each new year, I do the same dance as many of you. I examine the year we’ve just left behind and intentionally pursue change in certain areas of my life.
Some memories are so special that you know they’ll be held close to your heart for all time. For me, one of those memories was when we heard our daughter Grace laugh for the…
“Life was like a box of chocolates. You never know what you’re gonna get.” — Forrest Gump, in the film of the same name Most would agree that life can be unpredictable.
When our daughter Grace was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) at age 15, I thought our lives would never be the same again. Her life, and ours, seemed to come to…
For most of my life, I’ve been an open book. I tend to trust people quickly and make fast friends. That’s partly out of necessity, as I’ve been a military wife for most of…
My childhood memories hold a lot of special moments: our first family trip to Disney World, summers at the Jersey Shore, fun family celebrations. But mostly, I remember the mundane parts of family life.
As far back as I can remember, I wanted to be a mom. Sure, I had other interests, hobbies, and ambitions, but my deepest and most meaningful dreams were about motherhood. I not only…
Most of us have vivid memories of a day that changed the trajectory of our lives — that point on the calendar separating the before from the after. Some of those days hold the…
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