Author Archives: Mary Chapman

NORD’s Caregiver Respite Program Continues Through Pandemic

Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and dedication. To help meet that need, the National Organization for Rare Disorders (NORD)’s Rare Caregiver Respite Program may be a helpful resource. The program seeks to give a…

Art Contest Salutes Creativity of Rare Disease Communities

Butterflies, ballerinas, and abstract flowers are featured among the winning artwork of this year’s Rare Artist contest, hosted by the EveryLife Foundation for Rare Diseases to heighten awareness about rare disease communities and salute the creativity of its members. Awardees will be able to display their art and…

Emotional Responses to a LEMS Diagnosis

Lambert-Eaton myasthenic syndrome (LEMS) is a rare disorder that can mimic other neuromuscular conditions. Because of that and the disease’s slow progression, diagnosis can take some time. If you have LEMS and now know it’s the cause of your symptoms, such as muscle weakness, fatigue, and pain, you…

Recreational Therapy for LEMS Patients

Living with a chronic disorder such as Lambert-Eaton myasthenic syndrome (LEMS) can lead to anxiety, stress, and feelings of isolation. Recreational therapy can help to promote a greater sense of psychological and physical well-being. About LEMS LEMS is a rare autoimmune disorder that affects the nerve cells controlling muscle…

Tube Feeding in LEMS: Will I Ever Need It?

While tube feeding in Lambert-Eaton myasthenic syndrome (LEMS) may not be very common, there have been reports of patients needing it. Here is some information about LEMS and tube feeding. What is LEMS? LEMS is a rare autoimmune disorder that affects the nerve cells controlling muscle movement. The primary…

Sleep Hygiene for LEMS Patients

People with Lambert-Eaton syndrome (LEMS) may experience sleep problems. Because a good night’s sleep is essential to your physical and mental health, and to a good quality of life, it may be beneficial for you to practice sleep hygiene. What is sleep hygiene? Sleep hygiene is defined as…